Voices of NMO

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Tell Your Story

Christy’s NMO Story – Conquering Every Day with NMO

My NMO story started about 15 years ago. I was a sophomore in high school and was just released for summer break… The very next day, I started to feel ill. I was throwing up uncontrollably. It started with just a few times a day, and suddenly I was throwing up or dry heaving 12… Read More


Arlena’s NMO Story – Still Breathing

I was a 26 year old working in the Pentagon in the Navy Executive Dining Facility. I was Active Duty Navy for almost 8 years… On October 18, 2017, I had a colonoscopy because I was losing weight, bowels had blood and mucus coming out. After that, I start having a tingling in my thighs… Read More


Joyce’s NMO Story – I Am An NMO Warrior

Hello! My name is Joyce and I am from Pittsburgh, Pennsylvania. My NMO symptoms started with loss of bladder control, stress inconvenience, irritable bowel with constipation, and sensation loss in my legs and arms. I also experienced severe migraines. Some of my migraines for last for days.  I would see spots, have blurred vision, and… Read More


Ilene’s NMO Story – Lessons Learned; Resilience Cultivated

I’m Ilene, the youngest of seven children.  I come from a family of school teachers and musicians. I love board games, musicals, plays, happy movies, skeet ball, Tower of Terror and having other people cook for me. My dream life was to be a pianist, a teacher, get married, travel, have children, be the fun… Read More


Pam’s NMO Story – How NMO Reinforced Positivity

On Monday morning, Pam had a headache. For a woman who never got headaches, this was notable.  In addition, when she turned her eyes right and left, she experienced eye pain. She took some ibuprofin, and went to the office, where she worked as a dental hygienist.   On Friday, Pam had an existing appointment… Read More