Voices of NMO

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Tell Your Story

Julia’s Story – Early Signs of a Rare Disease

Now that I have been diagnosed with Myelin Oligodendrocyte Glycoprotein Antibody-Associated disease, or MOG-Ab disease, I have met others who are afflicted and have listened to their stories.  They all start similarly, with an acute attack, out of the blue, and always marking the start of an unexpected turn in health. My story is different…. Read More

Shantrice’s NMO Story – A Fear You Just Can’t Break

It all started when I was 20 years old – I went to urgent care because I was experiencing excruciating pain in my upper back to the point of tears. The urgent care team told me that I had a urinary tract infection and sent me home with a prescription for it. Two days later,… Read More

Katy’s NMO Story – The Making of a Warrior

This is a story of how a warrior is made. I have been gifted with the job of being this warrior’s mother and I am proud to share her story. This is the story of a smart, beautiful, strong, athletic, healthy 12 year-old who suddenly was thrown into battle – a battle with fear, unknowns,… Read More

Maurita’s NMO Story – Working Hard & Working Through

She thought it might be her fault. After all, she was working 14-hour days driving a truck, going to school full time and caring for a young son on her own…   In 2008, Maurita suffered a bad stomach virus, but she worked and studied through it.  Almost a year later, it happened again, virulently enough… Read More

Chelsey’s NMO Story – Sister & Scientist

Chelsey Judge, PhD, is a scientist with a particular interest in immunology. She also happen to be the sister of an NMO patient. Chelsey shares her Voices of NMO™ story from the perspective of a scientist, sibling, and scientific advisor to one of TSF for NMO’s partners, The Connor B. Judge Foundation, based in Cleveland,… Read More