Voices of NMO

Tell Your Story

Kellin’s NMO Story – One Step at a Time; The Journey Starts Here

My name is Kellin. I am a 28-year-old South African NMO patient and this is my story… Late in 2015, my father suddenly passed away. It was a shock to my system and I was not prepared for it.  In the months/years to follow, I experienced weird symptoms – which I now know were due… Read More

Lexi’s NMO Story – Shaping My Identity

Freshman year of college is a time to form your sense of identity, but when I started school, I thought that forming this ‘new’ me meant dying my hair blue, not being diagnosed with neuromyelitis optica…  On the night of September 27, 2017, I stayed up all night in my small dorm room coughing, with… Read More

Maureen’s NMO Story

Maureen is a nurse. She worked in neurocritical care at Johns Hopkins Hospital for many years before she had ever heard of NMO. But in 2007, shortly after Dr. Benjamin Greenberg joined the faculty at Johns Hopkins, he recruited her to work with him in neuroimmunology. It was there that she first came into contact… Read More

Mitchel’s NMO Story – Stronger Than Strong

My name is Mitchel Navarro. I’m 34 years old, a wife, and a proud momma to two beautiful children – a girl and a boy. I have a bachelors degree in elementary education and was a teacher when this journey began. My days would begin at 5 AM and I’d finally be able to crawl… Read More

Jean’s NMO Story – A Modern Medical Miracle

Sunday 15 December 2013, on a friend’s farm in the beautiful little town of Dullstroom in Mpumalanga South Africa, started as blissfully peaceful as it sounds. This was to change from around noon that day when I started experiencing severe headaches and bouts of dizziness. I initially thought it was hay fever or something like… Read More