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The Sumaira Foundation
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Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease (MOG-AD) In 2014, The Sumaira Foundation (TSF) launched to raise awareness of neuromyelitis optica spectrum disorder (NMOSD) and create a community of people brought together through shared experiences. As our network of patients, caregivers and supporters grew, the science was evolving. Researchers found patients who exhibited the same signs and […]
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The Sumaira Foundation
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March 10, 2022 – The Sumaira Foundation (TSF) is pleased to announce the launch of “Imagine My Life With NMO,” a video series showcasing the experiences of people living with neuromyelitis optica (NMO) around the world. The series follows Sumaira Ahmed, TSF founder, as she interviews patients, their loved ones and doctors to understand the […]
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The Sumaira Foundation
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February 10, 2022 – The Sumaira Foundation is pleased to welcome Dr. Joachim Havla of LMU Klinikum (Ludwig Maximilian University of Munich) as the first neurologist from Germany to join TSF’s medical advisory board. Dr. Joachim Havla Dr. Joachim Havla is a neurologist and senior physician at the Institute of Clinical Neuroimmunology at the LMU […]
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The Sumaira Foundation
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January 21, 2022 – The Sumaira Foundation is pleased to welcome Pr. Jacqueline Palace and Pr. Sarosh Irani from University of Oxford University to its Medical Advisory Board Jacqueline Palace, BM (Hons) FRCP DM Jacqueline Palace is a consultant neurologist in Oxford and Professor in the Nuffield Department of Clinical Neurosciences, Oxford University. She runs […]
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The Sumaira Foundation
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December 1, 2021 — The Sumaira Foundation is proud to announce the grant recipients of TSF’s 2021 SPARK and Unicorn grants. Congratulations to our 5 recipients who each received $25,000 to initiate their research projects! HLA Association in Pediatric MOG-AD, NMOSD, and ADEM 2021 Unicorn Grant recipient Nusrat Ahsan, MD | Children’s Hospital of Los […]
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The Sumaira Foundation
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November 22, 2021 – The Sumaira Foundation is pleased to welcome Professor Romain Marignier as the 1st international NMO specialist to join TSF’s medical advisory board. Romain Marignier, MD Pr. Romain Marignier is a neurologist (MD), professor at the Neurological Hospital of Lyon, France. His areas of expertise include neuro-inflammatory disorders of the central nervous […]
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The Sumaira Foundation
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October 15, 2021 — The Sumaira Foundation for NMO is pleased to welcome Michael Devlin to its Board of Directors. Michael Devlin Michael has spent most of his career focused on the health care sector. He worked over 15 years at McKinsey & Company, where as a senior partner based in Tokyo he led their […]
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The Sumaira Foundation
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September 21, 2021 — The Sumaira Foundation for NMO is pleased to welcome Stephanie Hamzo to its board of directors. Stephanie Hamzo With a true passion for patients, and dedication to connecting patients/caregivers in need of resources and support, Stephanie Hamzo has built her career in rare and ultra-rare disease communities. Throughout many roles she […]
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The Sumaira Foundation
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August 16, 2021 – The Sumaira Foundation for NMO is pleased to welcome Elena Grebenciucova, MD to its medical advisory board. Elena Grebenciucova, MD Dr. Elena Grebenciucova is a neuro-immunologist and NMO specialist at Northwestern University in Chicago, IL. She was initially trained in neurology at the University of Chicago and completed her neuro-immunology fellowship, […]
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The Sumaira Foundation
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August 13, 2021 — The Sumaira Foundation (TSF) is pleased to welcome Jennifer van Amerom to its Board of Directors as the foundation’s first country manager. An NMOSD patient herself, Jennifer will be leading and executing the TSF mission in Canada. She joined the organization’s team in fall 2020 as the TSF Ambassador of Ontario. […]
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