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Demystifying Clinical Trials: A Patient Guide

“Demystifying Clinical Trials: A Patient Guide” is TSF’s resource designed to help patients and their loved ones better understand the clinical trial process. This accessible guide breaks down key elements such as how trials work, what participation involves, potential benefits and risks and patient rights so individuals can make informed decisions about involvement. It also highlights the vital role patient participation plays in advancing research, accelerating the development of new therapies and improving outcomes for those living with rare diseases.

In this guide, you will learn:

This guide was developed by Hannah Titman, TSF Ambassador of Ohio and MOGAD patient.


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