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Media & Press


March 2023

Q&A: Importance of Raising Awareness of NMOSD

Entre Nous – Vivre FM

March 2023

Les Experts Santé: La Fondation Sumaira, focus sur la NMO & la MOGAD


March 2023

Identifying Reasons, Barriers to Low Employment Rates in NMOSD: Farrah Mateen, MD, PhD

Trieste Prima

March 2023

Malattie rare, è triestina l’ambasciatrice italiana della fondazione americana The Sumaira


February 2023

NMOSD – A Rare Autoimmune Disease Personal Story – Leda Bresnov

Financial Times

February 2023

Why awareness is the key to managing NMOSD

PR Newswire

February 2023

The Sumaira Foundation (TSF) annonce la création et le lancement de TSF France, apportant un soutien supplémentaire indispensable à la communauté française touchée par la NMO et la MOGAD

Express Healthcare

February 2023

An appeal for a more inclusive, representative, and accessible National Rare Disease Policy


British Journal of Family Medicine

October 2022

What is NMOSD? A rare disease, commonly misdiagnosed as MS.

Neurology Live

September 2022

The Patient Perspective on Neuromyelitis Optica Spectrum Disorder: Sumaira Ahmed

Authority Magazine

August 2022

Female Disruptors: Sumaira Ahmed of The Sumaira Foundation On the Three Things You Need To Shake Up Your Industry

PR Newswire

August 2022

The Sumaira Foundation Announces Acquisition of the Connor B. Judge Foundation

Autoimm[you]ne podcast

June 2022

In S1E6, DrugViu interviews Sumaira Ahmed about her diagnosis with NMOSD and vision for the future of The Sumaira Foundation.

Chesire News

February 2022

Rare Incurable Condition leaves Ellesmore Port Mum with Sudden Sight Loss

NMOSD Your Way

February 2022

NMOSD Your Way Podcast hosted by NMOSD Patient Ambassador, Lelainia


February 2022

Horizon Therapeutics plc Launches #RARE is Representation Program to Elevate Global Rare Disease Equity

Neuromyelitis News

February 2022

Make It Count: A Visit With Prominent NMO Advocate Sumaira Ahmed

CBS Denver

February 2022

Denver Teen, Family Helps Others Around the World With Rare Disease


February 2022

Woman Making Science Meaningful

#RAREis Representation

February 2022

Discussing the Importance of Diversity, Equity, Inclusion, and Allyship in the Global Rare Disease Community


VMLY&Rx Patient Podcast

September 2021

Podcast featuring Sumaira Ahmed

Horizon Therapeutics

October 2021

#RAREis Video – Meet Sumaira Ahmed

Wall Street Journal

October 2021

Medicare Drug-Pricing Debate Pits Savings Against Innovation


November 2021

Somerville Resident Sumaira Ahmed Wins WEGO Award for her Work in Healthcare

Portal Instruments

March 2021

Portal Instruments Partners with The Sumaira Foundation for NMO


June 2021

WeWork Is Helping Women Founders Get Back to the Office

Burfi & Bubbles Podcast

July 2021

From Reel Life to Real Life: In Conversation with Sumaira Ahmed


Bits of Business

November 2020

How She Used her Diagnosis of NMO to Create Her Successful Organization

Brookline Tab

October 2020

OPINION: Voting and Supporting the Biopharmaceutical Industry


September 2020

Creating Community in Rare Disease

National Infusion Center Association

July 2020

How to Prepare for Your First Infusion


May 2020

Patient insights: Neuromyelitis Optica


January 2020

30 Nonprofit Founders Who Will Impact the World in 2020


Bringham Bulletin

August 2019

‘Illuminating the Darkness’ Around a Rare Disease


August 2019

Listening & Learning from the Rare Disease Patient


August 2019

Listening to the Rare Disease Patient Can Improve Outcomes

Socially Superlative

April 2019

The Sumaira Foundation 4th Annual NMO Awareness Gala

Improper Bostonian

April 2019

NMO Awareness Gala

Mass General Research Institute

February 2019

Rare Disease Day 2019: Neuromyelitis Optica

Bringham Bulletin

January 2019

Warming Hearts on a Winter Day


The Transverse Myelitis Association

October 2018

The TMA Announces its Partnership with The Sumaira Foundation

Bella Gladys Magazine

June 2018

3rd NMO Gala

Improper Bostonian

April 2018

NMO Awareness Gala


Boston Voyager

November 2017

Meet Sumaira Ahmed of The Sumaira Foundation for NMO in Brookline

BU Communicator

November 2017

A Spark in the Dark: An Interview with Sumaira Ahmed

Wedding Chicks


Urban and Elegant Wedding Ideas ft. Sumaira Ahmed


October 2017

First-ever Boston Event to Form Network for NMO Patients

Socially Superlative

March 2017

The Sumaira Foundation’s 2nd Annual NMO Awareness Gala


Vibrant Gene


What is NMO?

August 2016

Top 10 South Asian American Beauty Pageant to Know



Miss Bangladesh USA Seeks to Raise Awareness of a Rare Disease


Boston Magazine

September 2014

Local Woman Launches Nonprofit for Autoimmune Disease

Industry Partners

Community Partners

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