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Media & Press

2024

Rare Disease Advocates Unite for Research and Support at Rare Disease Day Event
April 2024 (The University of New Mexico)
La huesped extraña: NMO 
March 2024 (La nueva Crónica del Quindío)
Treating NMOSD: Where Do We Go After Complement Inhibition’s Success?
March 2024 (NeurologyLive)
Mese della Euromielite Ottica NMOSD, sabato Fontana del Nettuno illuminata di fucsia
March 2024 (Cafe Trieste IT)
DoubleTree downtown turns pink to support NMOSD Awareness Month
March 2024 (KOB 4 Eyewitness News)
J’étais fière d’accompagner ma mère au quotidien » : le témoignage d’Emma, aidante depuis l’âge de 12 ans
February 2024 (ELLE FR)
Meeting of Minds: Global Collective Discuss Key Issues in Rare Neuroimmune Conditions
January/February 2024 (PharmaTimes Magazine)
Health Canada Approves Inebilizumab as Treatment for Neuromyelitis Optica Spectrum Disorder
January 2024 (NeurologyLive)
Patient Perspective on the Health Canada Approval of Inebilizumab for NMOSD: Sumaira Ahmed
January 2024 (NeurologyLive)
Ep. 88: How a rare disease diagnosis birthed a non-profit with The Sumaira Foundation’s Sumaira Ahmed
January 2024 (The Indian Edit Podcast)
Ep. 2: One in a Million
January 2024 (EFNA’s Brain Health Matters)

2023

Global Initiatives on NMOSD and MOGAD
December 2023 (Neurology® Podcast)
Patient Engagement in Action: Inside The Sumaira Foundation’s Global Ambassador Program
December 2023 (Neurology® Journals Blog)
How to Lower Your Risk of Neurology-Related Vision Loss
October 2023 (Brain & Life Magazine)
HCPs May Underestimate the Burden of NMOSD on Patients, Specifically Regarding its Effect on QoL, Pain, Disability and other Factors
August 2023 (Med Learning Group podcast)
She Turned a Devastating Diagnosis into Hope
August 2023 (BU Collegian)
Horizon Therapeutics Chairman, President and CEO Tim Walbert Named the First Recipient of the Global Rare Trailblazer Award by The Sumaira Foundation
June 2023 (PR Newswire)
Q&A: Importance of Raising Awareness of NMOSD
March 2023 (Gene.com)
Les Experts Santé: La Fondation Sumaira, focus sur la NMO & la MOGAD
March 2023 (Entre Nous – Vivre FM)
Identifying Reasons, Barriers to Low Employment Rates in NMOSD: Farrah Mateen, MD, PhD
March 2023 (NeurologyLive)
Malattie rare, è triestina l’ambasciatrice italiana della fondazione americana The Sumaira
March 2023 (Trieste Prima)
NMOSD – A Rare Autoimmune Disease Personal Story – Leda Bresnov
February 2023 (EFNA)
Why awareness is the key to managing NMOSD
February 2023 (Financial Times)
The Sumaira Foundation (TSF) annonce la création et le lancement de TSF France, apportant un soutien supplémentaire indispensable à la communauté française touchée par la NMO et la MOGAD
February 2023 (PR Newswire)
An appeal for a more inclusive, representative, and accessible National Rare Disease Policy
February 2023 (Express Healthcare)

2022

What is NMOSD? A rare disease, commonly misdiagnosed as MS
October 2022 (Pavilion Health)
The Patient Perspective on NMOSD: Sumaira Ahmed
September 2022 (Neurology Live)
Female Disruptors: Sumaira Ahmed of The Sumaira Foundation On the Three Things You Need To Shake Up Your Industry
August 2022 (Authority Magazine)
The Sumaira Foundation Announces Acquisition of the Connor B. Judge Foundation
August 2022 (PR Newswire)
DrugViu interviews Sumaira about her NMOSD diagnosis and vision for the future of The Sumaira Foundation
June 2022 (Autoimm[you]ne podcast)
Rare Incurable Condition leaves Ellesmore Port Mum with Sudden Sight Loss
February 2022 (Cheshire News)
Newly Diagnosed: Sumaira Ahmed
February 2022 (NMOSD Your Way Global podcast)
Horizon Therapeutics plc Launches #RARE is Representation Program to Elevate Global Rare Disease Equity
February 2022 (Businesswire)
Make It Count: A Visit With Prominent NMO Advocate Sumaira Ahmed
February 2022 (Neuromyelitis News)
Denver Teen, Family Helps Others Around the World With Rare Disease
February 2022 (CBS Denver)
Woman Making Science Meaningful
February 2022 (MM&M)
Discussing the Importance of Diversity, Equity, Inclusion, and Allyship in the Global Rare Disease Community
February 2022 (#RAREis Representation)

2021

Somerville Resident Sumaira Ahmed Wins WEGO Award for her Work in Healthcare
November 2021 (Wicked Local)
Meet Sumaira Ahmed
October 2021 (Horizon Therapeutics)
Medicare Drug-Pricing Debate Pits Savings Against Innovation
October 2021 (Wall Street Journal)
The Sumaira Foundation – neuromyelitis optica spectrum disorder
September 2021 (VMLY&Rx Patient Podcast)
Portal Instruments Partners with The Sumaira Foundation
March 2021 (Portal Instruments)
WeWork Is Helping Women Founders Get Back to the Office
June 2021 (WeWork)
From Reel Life to Real Life: In Conversation with Sumaira Ahmed
July 2021 (Burfi & Bubbles)

2020

How She Used her Diagnosis of NMO to Create Her Successful Organization
November 2020 (Bits of Business)
OPINION: Voting & Supporting the Biopharmaceutical Industry
October 2020 (Brookline Tab)
Creating Community in Rare Disease
September 2020 (Genentech)
How to Prepare for Your First Infusion
July 2020 (National Infusion Center Association)
Patient insights: Neuromyelitis Optica
May 2020 (Pharmaphorum)
30 Nonprofit Founders Who Will Impact the World in 2020
January 2020 (Causeartist)

2019

‘Illuminating the Darkness’ Around a Rare Disease
August 2019 (Brigham Bulletin)
Listening & Learning from the Rare Disease Patient
August 2019 (Alexion Pharmaceuticals)
Listening to the Rare Disease Patient Can Improve Outcomes
August 2019 (Patient Worthy)
The Sumaira Foundation 4th Annual Awareness Gala
April 2019 (Socially Superlative)
NMO Awareness Gala
April 2019 (Improper Bostonian)
Rare Disease Day 2019: Neuromyelitis Optica
February 2019 (Mass General Research Institute)

2018

The TMA Announces its Partnership with TSF
October 2018 (The Transverse Myelitis Association)
3rd NMO Gala
June 2018 (Bella Gladys Magazine)
NMO Awareness Gala
April 2018 (Improper Bostonian)

2017

Meet Sumaira Ahmed of The Sumaira Foundation in Brookline
November 2017 (Boston Voyager)
A Spark in the Dark: An Interview with Sumaira Ahmed
November 2017 (BU Communicator)
Urban and Elegant Wedding Ideas ft. Sumaira Ahmed
2017 (Wedding Chicks)
First-ever Boston Event to Form Network for NMO Patients
October 2017 (CityBizList)
The Sumaira Foundation’s 2nd Annual Awareness Gala
March 2017 (Socially Superlative)

2016

What is NMO?
2016 (Vibrant Gene)
Top 10 South Asian American Beauty Pageant to Know
August 2016 (India.com)

2015

Miss Bangladesh USA Seeks to Raise Awareness of a Rare Disease
2015 (India.com)

2014

Local Woman Launches Nonprofit for Autoimmune Disease
September 2014 (Boston Magazine)

Industry Partners

Community Partners

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