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EVENT RECAP | Rochester Patient Day

Posted by: The Sumaira Foundation in Community, Events, News & Announcements

On Saturday, June 20, 2026, TSF hosted a Patient Day in Rochester Mayo Clinic for Rare Neuroinflammatory Disorders in collaboration with Dr. Eoin Flanagan and Dr. John Chen from Mayo Clinic Rochester held at the Mayo Civic Center. Our in-person event hosted 100+ attendees including patients, caregivers, clinicians, advocates and industry representatives impacted or involved in:

• Autoimmune encephalitis (AE)
• Chronic inflammatory demyelinating polyneuropathy (CIDP)
• Myelin oligodendrocyte glycoprotein antibody-associated disorder (MOGAD)
• Myasthenia gravis (MG)
• Neuromyelitis optica spectrum disorder (NMOSD)
• Stiff Person Syndrome (SPS)

We were proud to partner with the Autoimmune Encephalitis Alliance, MG Holistic Society, and Stiff Person Syndrome Research Foundation.

CLICK HERE OR THE BUTTON BELOW TO VIEW OUR PHOTO GALLERY

CLICK HERE OR THE BUTTON BELOW TO WATCH THE REPLAYS

MEET OUR FEATURED EXPERTS

• Dr. John Chen (Mayo Clinic) (NMOSD)
• Dr. Eoin Flanagan (Mayo Clinic) (NMOSD, MOGAD, AE)
• Susan Horsman (Pharm.D., R.Ph.) (Mayo Clinic)
• Dr. Felipe Jones (Mayo Clinic) (MG, Neuro-opthamology)
• Dr. Andrew McKeon (Mayo Clinic) (AE)
• Dr. Daniel Rohe (Mayo Clinic) (Rehabilitation Psychology)
• Dr. Alex Shoemaker (Mayo Clinic) (Psychiatry)
• Dr. Anastasia Zekeridou (Mayo Clinc) (AE)

MEET OUR PATIENT & CAREGIVER PANELISTS

Addison (NMOSD) | Andre (MG) | Danica (MOGAD) | Lauren (Caregiver) | Lisa (AE) | Michelle (NMOSD) | Nasha (Caregiver) | Noah (MOGAD) | Niki (MG) | Dr. Sanjay Chakrapani (Caregiver) | Stephanie (SPS) | Tara (SPS) | Tia (MG) | Whitney (Caregiver)

THIS EVENT WAS MADE POSSIBLE WITH SUPPORT FROM:
Amgen (platinum sponsor), Alexion, UCB, argenx, and Genentech

Special thanks to our volunteers: Carla, Cassandra, Jeffrey, Johnny, and Lee