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TSF NMO Awareness Month 2024

Let’s celebrate!

March is NMO Awareness Month and we’re excited to share all of the ways you can get involved and help illuminate neuromyelitis optica spectrum disorder (NMOSD).

Share your #NMOmilestone

In 2024, TSF is turning 10! To celebrate the Foundation’s milestone during NMO Awareness Month, we want to share your NMO milestone that you’re most proud of while living with or caring for someone with NMO.

For example, Sumaira’s #NMOmilestone post says: I started dancing when I was 3 years old. When I got diagnosed in 2014, I was certain that I would never be able to dance again due to severe vision loss and pain throughout my entire body. But last year, I started dancing again (without pain!) and it’s improved so many other aspects of my life and health.

To share your milestone with us, email [email protected] with a vertical photo that illustrates your milestone, 2-3 sentences, and links to your social media channels so we can tag you!

“Get Smart” on NMOSD

At TSF, we always say that knowledge is power. To be your own best advocate or for your loved ones, learn about all things NMOSD by accessing any of the resources below. Our website is now available in over 25 languages so anyone visiting our website can access information, stories and resources in the language they are most comfortable with.

Patient Day for NMOSD & MOGAD – New England

Saturday, March 9th | Patient Day for NMOSD & MOGAD – New England

In collaboration with Dr. Michael Levy and Dr. Marcelo Matiello at Mass General Hospital, The Sumaira Foundation was pleased to welcome 100+ patients, caregivers, clinicians, researchers and advocates from New England to attend TSF’s New England Patient Day, a special day dedicated to NMOSD & MOGAD education, impact and community engagement. We were joined by special guest Christine Ha, NMOSD patient/advocate, MasterChef Season 3 winner, author and celebrity chef.

Special thanks to our sponsors Amgen (platinum), UCB, Alexion Pharmaceuticals and Portal Instruments.

Attend a Webinar

Friday, March 1st | Myths & Facts – Family Planning Considerations for NMOSD & other rare neurological conditions (English/Arabic) featuring Dr. Ahmed Shatila (Sheikh Shakhbout Medical City)

Thursday, March 14th | Forståelse af ligheder og forskelle mellem NMOSD, MOGAD og MS (Danish) featuring Dr. Nasrin Asgari (University of Southern Denmark)

Monday, March 18th | Verleden, heden en toekomst van behandelingen voor NMOSD en MOGAD (Dutch) featuring Prof. Dr. Barbara Willekens (Universitair Ziekenhuis Antwerpen en Universiteit Antwerpen, België) and Dr. Beatrijs Wokke (Erasmus Medisch Centrum Rotterdam)

Tuesday, March 19th | Was Betroffene über NMOSD und MOGAD wissen sollten (German) featuring PD. Dr. med. Joachim Havla (Ludwig-Maximilians-Universität München)

Wednesday, March 20th | La storia e l’evoluzione di NMOSD (Italian) featuring Prof. Dr. Luca Massacesi (Università di Firenze) and Dr. Sara Mariotto (Università di Verona)

Thursday, March 21st | La rééducation et la récupération dans les maladies neurologiques (SEP, NMOSD, MOGAD) (French) featuring Dr. Cécile Donzé (Hôpital Saint Philibert de Lomme)

Thursday, March 21st | Compreendendo as semelhanças e diferenças entre NMOSD, MOGAD e EM (Portuguese) featuring Prof. Dr. Jefferson Becker (Pontifícia Universidade Católica do Rio Grande do Sul)

Participate in a Support Group Meeting

We invite patients, caregivers and their loved ones to join any of our upcoming virtual support group meetings led by TSF Ambassadors.

Join the #NMOvement!

 #TSFNMO2024 social media graphics are available in Arabic, Danish, Dutch, English, French, German, Hindi, Italian, Japanese, Portuguese, Spanish and Turkish. Join the #NMOvement by sharing our graphics on your social media accounts!

To download a graphic, right click and choose “Save Image As.” Don’t forget to tag us and use the hashtags #TSFNMO2024 and #NMOvement

A special thanks to Amgen for their support of TSF’s NMO Awareness Month 2024 activities.

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