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Blog Posts

How I Started a Foundation

Posted by: The Sumaira Foundation in Blog Posts

It was mid-August. We were leaving Mass General Hospital. I’d been discharged after almost a week’s stay. I was just diagnosed with NMO. It was merely an acronym;the meaning hadn’t yet sunk in. I told my friend as we got into the car, “I’m not sure how yet, but somehow this has to become a good thing.” […]

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At The Mercy of Medication

Posted by: The Sumaira Foundation in Blog Posts

I read somewhere that steroids are known as Satan’s tic tacs… Let me give you a short synopsis in case you’re stumbling upon my story for the first time. In the summer of 2014, I was diagnosed with a rare autoimmune disease – Neuromyelitis Optica [NMO] – that affects the optic nerves and spinal chord. […]

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New Plasma, New Me

Posted by: The Sumaira Foundation in Blog Posts

It was the Thursday before Columbus Day Weekend. I had an early morning flight to New Jersey the next day to spend the weekend with my family. I hadn’t left Boston in a while so I was really looking forward to a change of scenery. Though eager to get out of town, I’d been experiencing […]

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Strength in your Tears

Posted by: The Sumaira Foundation in Blog Posts

This post may have been more difficult to write than the documentation of my sickness. However, I share this because I hope the ultimate message is helpful to anyone struggling with a tragedy or life changing event. [Please don’t mistake this as a plea of sympathy as it is far from that.] Last week, I […]

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Life As I Now Know It…

Posted by: The Sumaira Foundation in Blog Posts

I debated for a while about whether or not I wanted to publicly discuss my recent illness. I ultimately decided to in efforts to help patients like myself and build awareness on this terrifying disease that is rarely ever heard of. Brace yourself, this is the abridged version… June 27, 2014, I woke up noticing […]

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