Voices of NMO

Click here to listen to our Voices of NMO podcast!

Tell Your Story

Julie’s NMO Story – Transforming Curses Into Blessings

Julie has had NMO for at least a dozen years.   From before and since that time, she has been diagnosed with a number of other conditions.  She has been knocked down, again and again, and has always picked herself back up. She is one strong woman.  As a mother and grandmother, Julie knows that… Read More


Robin’s NMO Story – Living in the Moment with NMO

I was diagnosed with Neuromyelitis Optica on July 25, 2015.  My story is a little different than many of the stories I’ve heard or read about because my symptoms started only 11 days earlier.  I had a fever and began to have pain in my hands.  Over the course of the next few days, my… Read More


Liz’s NMO Story – In Orbit, Flying High

  Liz has had NMO for 25 years now.  She’s only known it for ten… Since she’d had migraines throughout her childhood, Liz and her mother didn’t think too much of it when, at age 11, the “migraine” around her left eye was so bad that she thought she needed glasses.  But obligingly, her mother… Read More


Betty’s NMO Story – The NMO Monster

In October 2015, as I was traveling to Oklahoma to visit my sister, I developed a deep gray-teardrop-shaped spot in my right eye which increased after I arrived. I mentioned this to my sister as it was odd I could see around this shape. There was a little soreness and my eye was slightly itchy…. Read More


Dr. Weinshenker’s NMO Story – Witnessing the Transformation of Neuromyelitis Optica

My name is Brian Weinshenker and I am a neurologist at the Mayo Clinic in Rochester, MN.  I established a career as an MS specialist and have had an interest in conditions that mimic MS and issues relating to the accuracy of MS diagnosis.  Neurologists have no specific tests for MS; a diagnosis is established… Read More