Voices of NMO

Tell Your Story

Daniele’s NMO Story – MENINA CORAGEM (Courageous Girl)

I was diagnosed with Neuromyelitis Optica in June of 2012 after two hospitalizations totaling 5 months, during which I lost all my strength, ability to move and all feeling from my chest down… My first symptoms, during August and September of 2011, were nausea and vomiting. Nowadays, I know that those are very peculiar characteristics… Read More

Kia’s NMO Story – Deciphering my Diagnosis

The Diagnosis My NMO journey started after my 29th birthday in January 2016. I had a headache that would not go away. It was unlike anything I had experienced before. At the time I had just embarked on a new semester in law school. Everyone around me thought it was just law school stress. The… Read More

Dionne’s NMO Story – Journey to a Diagnosis

Meet Dionne, a vibrant 46-year old, former nurse, mother of 2 from New Orleans, Louisiana who has been living with NMO since 2009. Click below to watch Dionne share her NMO journey, what/who inspires her, and words of encouragement! Published July 14, 2017

Megan’s NMO Story – Coping via Cosmetics

Meet Megan, a 16 year old NMO patient who and YouTube sensation (@PerfectlyKnitBeauty) who has been coping with her chronic illness through the use of makeup. We laud her courage, wisdom, and incredible strength. Be inspired with the video below! Megan’s story marks our 20th Voices of NMO story and the 1st video submission. To… Read More

Lillian’s NMO Story – Living For Her Family

She thought she had a bad sunburn… Lillian had gone camping with her daughter and her Girl Scout troop in September of 2015.  When she returned home, her shoulders and arms burned, but strangely, had not changed color.  The burning sensation lasted for months.  Lillian was in severe pain, and felt as if her body… Read More