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Posted by: The Sumaira Foundation in CNS Vasculitis, Patient, Voices of NMO
My name is Vanessa, I’m living with CNS vasculitis—and thriving. It’s been a journey marked by uncertainty, grit, and an incredible team of specialists who’ve helped me navigate this rare […]
Read MorePosted by: The Sumaira Foundation in Caregiver, MOGAD, Voices of NMO
Questa è la prima volta che racconto pubblicamente la nostra storia. Finora è rimasta in poche parole sussurrate. Ma oggi, dopo più di un anno, sento che è arrivato il […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
Hola, soy Gabriela Milagros, me suelen decir “Mily” Cuando fui muy pequeña lamentablemente viví en un entorno no muy agradable, perdí a quien yo consideraba mi madre, mi abuelita con […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On Saturday, November 8, 2025, TSF Canada hosted a Patient Day in Toronto for Rare Neuroinflammatory Disorders in collaboration with the University of Toronto and SickKids Hospital at the OBA […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
The Sumaira Foundation is pleased to welcome Dr. E. Ann Yeh, Professor of Pediatric Neurology at the University of Toronto to join TSF’s international Medical Advisory Board. Dr. E. Ann […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On Saturday, October 18, 2025, TSF hosted a Patient Day in Seattle for Rare Neuroinflammatory Disorders in collaboration with Dr. Shuvro Roy from the University of Washington Medicine Neurosciences Institute […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
¿Alguna vez has tenido uno de esos sueños en los que, por más que corres, no avanzas? Bueno, pues así es como me he sentido durante los últimos tres años. […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
It was October 2019, I was a young mom at 25 years old toting around a toddler and an infant, and had my hands full in the most beautiful and […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On September 24, 2025, we welcomed 165 clinicians, researchers, patients, caregivers and industry partners from all over the world to TSF’s Research Update & Award Ceremony at Casa Llotja de […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
Community Comes Together at TSF’s 5K for Rare Neuroimmune Disorders in Weston, MA On Sunday, September 28th, The Sumaira Foundation (TSF) hosted its inaugural 5K for Rare Neuroimmune Disorders in […]
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