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Posted by: The Sumaira Foundation in News & Announcements
Am Samstag, den 7. März 2026, veranstaltete TSF in Zusammenarbeit mit Prof. Friedemann Paul an der Charité Berlin einen Patiententag für seltene neuroimmunologische Erkrankungen. Bei unserer Präsenzveranstaltung durften wir über […]
Read MorePosted by: The Sumaira Foundation in MOGAD, Patient, Voices of NMO
La MOGAD est entrée dans ma vie sans prévenir. Au début, c’était presque rien. Une petite tache noire dans mon œil droit, en mai 2022. Je pensais que ça passerait. […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
The Sumaira Foundation (TSF) is delighted to welcome Taylor Macey to our leadership team as Director of Patient Engagement. In her new role, Taylor will lead the strategy and execution […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On Saturday, February 21, 2026, TSF hosted a Patient Day in Honolulu for rare neuroinflammatory disorders in collaboration with Dr. Natalia Gonzalez Caldito and Dr. Alexandra Galati at the Hawaii […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
Written by Rashmi, TSF Ambassador of India TSF India Ambassadors, Rashmi and Clarinda Cerejo, represented The Sumaira Foundation at the International Clinical Neuroimmunology Workshop (ICNW) 2026 in Mangalore, India, engaging […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
Before September 2024, my life was full of movement. I was the kind of person who rarely sat still – playing pickleball, skiing in the winter, walking my dogs. Willow […]
Read MorePosted by: The Sumaira Foundation in Myasthenia Gravis (MG), Patient, Voices of NMO
Mi chiamo Adalgisa, ho trent’anni e nel 2023 ho scoperto di avere la Miastenia Gravis: una malattia neuromuscolare cronica e autoimmune che provoca debolezza muscolare. Da quel momento penso sempre […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
The Sumaira Foundation (TSF) is pleased to announce Genevieve Richards as Community Development Manager, a strategic leadership role focused on strengthening and scaling the organization’s global Ambassador network. Genevieve received […]
Read MorePosted by: The Sumaira Foundation in Autoimmune Encephalitis (AE), Patient, Voices of NMO
In 2023, I was preparing to go to Washington, DC for Rare Disease Week as a Young Adult Rare Representative (YARR) with the EveryLife Foundation for Rare Diseases. I had […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
The Sumaira Foundation is pleased to welcome Dr. José Avila Ornelas, Adjunct Professor of Neurology at the University of Puerto Rico to join TSF’s international Medical Advisory Board as the […]
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