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Posted by: The Sumaira Foundation in Patient, Thyroid Eye Disease (TED), Voices of NMO
Je faisais le tour de l’Europe en camping-car avec mon conjoint depuis un an. Je venais de me lancer comme formatrice et nous voyagions : je n’avais jamais été aussi […]
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Posted by: The Sumaira Foundation in Myasthenia Gravis (MG), Patient, Voices of NMO
In the world of elite distance swimming, success is built on a specific, predictable dialogue between the mind and the body. As a miler ranked at the top of the […]
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Posted by: The Sumaira Foundation in News & Announcements
In April, the team at Oxford University hosted their annual patient day for NMOSD and MOGAD patients and caregivers at the Aston Conference Centre. Rue and Jaycee – both NMOSD […]
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Posted by: The Sumaira Foundation in MOGAD, Patient, Voices of NMO
At 26, my life felt like it was coming together. I was a young professional, full of energy, building my career and enjoying life in the city. I spent a […]
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Posted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
Just a few months ago I was diagnosed with NMOSD—and my life changed over night. Before that, I was an Ironman in training. I was two months away from my […]
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Posted by: The Sumaira Foundation in News & Announcements
Am Samstag, den 7. März 2026, veranstaltete TSF in Zusammenarbeit mit Prof. Friedemann Paul an der Charité Berlin einen Patiententag für seltene neuroimmunologische Erkrankungen. Bei unserer Präsenzveranstaltung durften wir über […]
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Posted by: The Sumaira Foundation in MOGAD, Patient, Voices of NMO
La MOGAD est entrée dans ma vie sans prévenir. Au début, c’était presque rien. Une petite tache noire dans mon œil droit, en mai 2022. Je pensais que ça passerait. […]
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Posted by: The Sumaira Foundation in News & Announcements
The Sumaira Foundation (TSF) is delighted to welcome Taylor Macey to our leadership team as Director of Patient Engagement. In her new role, Taylor will lead the strategy and execution […]
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Posted by: The Sumaira Foundation in News & Announcements
On Saturday, February 21, 2026, TSF hosted a Patient Day in Honolulu for rare neuroinflammatory disorders in collaboration with Dr. Natalia Gonzalez Caldito and Dr. Alexandra Galati at the Hawaii […]
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Posted by: The Sumaira Foundation in News & Announcements
Written by Rashmi, TSF Ambassador of India TSF India Ambassadors, Rashmi and Clarinda Cerejo, represented The Sumaira Foundation at the International Clinical Neuroimmunology Workshop (ICNW) 2026 in Mangalore, India, engaging […]
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