Posted by: The Sumaira Foundation in Events, News & Announcements
You’re invited to attend an exclusive summer event to Celebrate 8 Years of TSF Thursday, July 28 @ at 6:30 PM The Envoy Hotel Lookout Rooftop & Bar (70 Sleeper St, Boston, MA 02210, overlooking Boston’s financial district) With your support, over the past 8 years the foundation has: Awarded $500,000+ to NMO/MOG-AD research Shared 130 Voices of NMO/MOG […]
Read MorePosted by: The Sumaira Foundation in News & Announcements, Uncategorized
June 3, 2022 – The Sumaira Foundation is pleased to welcome Dr. José Flores of the National Institute of Neurology and Neurosurgery (INNN) in México City as the first neurologist from Latin America to join TSF’s medical advisory board. Dr. José Flores José Flores is currently a member of the Board of Directors at National Academy […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
WASHINGTON, May 26, 2022—The PAN Foundation and The Sumaira Foundation (TSF) today announced they are launching a new partnership to help people living with neuromyelitis optica spectrum disorder (NMOSD), providing up to $9,600 per year in financial assistance and support services for patients and their caregivers or loved ones. Neuromyelitis optica spectrum disorder (NMOSD), also […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease (MOG-AD) In 2014, The Sumaira Foundation (TSF) launched to raise awareness of neuromyelitis optica spectrum disorder (NMOSD) and create a community of people brought together through shared experiences. As our network of patients, caregivers and supporters grew, the science was evolving. Researchers found patients who exhibited the same signs and […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient, Voices of NMO
Clean and clear were my glasses but still I had trouble seeing clearly with my right eye. On Easter Monday in 2019, my vision deteriorated and by the end of the week, I was admitted to the hospital. I was feeling sick with almost no vision left in both eyes, experiencing painful eye movements and […]
Read MorePosted by: The Sumaira Foundation in Events
375 guests. $220K raised for research. 22 patients from 15 cities in 2 countries. On Saturday, March 26, 2022, 375 guests gathered for the 5th Annual NMO Awareness Gala at the Mandarin Oriental in Boston. We set an ambitious fundraising goal and are proud to have raised $220,000 for NMO/MOG research thanks to our generous donors, […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
A native Portuguese speaker and resident of Denmark, Leda wrote her story in English, Portuguese, and Danish. Please scroll down to read Leda’s story in Portuguese and/or Danish. In 2018 my life was peaking. My family was doing well. I had the most amazing job and spent my spare time teaching Zumba classes, boxing, and […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
March 10, 2022 – The Sumaira Foundation (TSF) is pleased to announce the launch of “Imagine My Life With NMO,” a video series showcasing the experiences of people living with neuromyelitis optica (NMO) around the world. The series follows Sumaira Ahmed, TSF founder, as she interviews patients, their loved ones and doctors to understand the […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Part I and II of this story were originally published in 2015 by NMO Stories, presented by The Guthy-Jackson Foundation and the Connor B. Judge Foundation. It was shared again on November 14th, 2019 in In Their Own Words by SRNA (Siegel Rare Neuroimmune Association). Part I Sometimes I think I could write a book about my story with NMO… […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My name is Pauline Richardson nee Grant. I grew up on a farm in Jamaica. My mom, being a cheerful giver, would invite people over all the time, always making sure they were well fed. My parents instilled in us strong values, the importance of family, faith, and community. My parents’ caring and compassionate attitude […]
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