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Posted by: The Sumaira Foundation in News & Announcements
Il 22 novembre 2025, TSF Italia ha organizzato a Roma la sua terza Giornata del Paziente dedicata alle malattie neuroimmunologiche rare. Un evento emozionante e interattivo che ha riunito 68 […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
Les 29 et 30 novembre nous avons rassemblé une brochette d’experts et des Patients et Aidants de tous âges pour échanger et informer sur ces deux maladies, pour faire la […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of TSF
Hola mi nombre es Anayansi, soy de Panamá y esta es, Mi historia, contada desde mi experiencia. Mi historia de salud empezó muy joven. A los 16 años me diagnosticaron […]
Read MorePosted by: The Sumaira Foundation in CNS Vasculitis, Patient, Voices of TSF
My name is Vanessa, I’m living with CNS vasculitis—and thriving. It’s been a journey marked by uncertainty, grit, and an incredible team of specialists who’ve helped me navigate this rare […]
Read MorePosted by: The Sumaira Foundation in Caregiver, MOGAD, Voices of TSF
Questa è la prima volta che racconto pubblicamente la nostra storia. Finora è rimasta in poche parole sussurrate. Ma oggi, dopo più di un anno, sento che è arrivato il […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of TSF
Hola, soy Gabriela Milagros, me suelen decir “Mily” Cuando fui muy pequeña lamentablemente viví en un entorno no muy agradable, perdí a quien yo consideraba mi madre, mi abuelita con […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On Saturday, November 8, 2025, TSF Canada hosted a Patient Day in Toronto for Rare Neuroinflammatory Disorders in collaboration with the University of Toronto and SickKids Hospital at the OBA […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
The Sumaira Foundation is pleased to welcome Dr. E. Ann Yeh, Professor of Pediatric Neurology at the University of Toronto to join TSF’s international Medical Advisory Board. Dr. E. Ann […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On Saturday, October 18, 2025, TSF hosted a Patient Day in Seattle for Rare Neuroinflammatory Disorders in collaboration with Dr. Shuvro Roy from the University of Washington Medicine Neurosciences Institute […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of TSF
¿Alguna vez has tenido uno de esos sueños en los que, por más que corres, no avanzas? Bueno, pues así es como me he sentido durante los últimos tres años. […]
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