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Posted by: The Sumaira Foundation in NMOSD, Patient, Voices of TSF
It was October 2019, I was a young mom at 25 years old toting around a toddler and an infant, and had my hands full in the most beautiful and […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On September 24, 2025, we welcomed 165 clinicians, researchers, patients, caregivers and industry partners from all over the world to TSF’s Research Update & Award Ceremony at Casa Llotja de […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
Community Comes Together at TSF’s 5K for Rare Neuroimmune Disorders in Weston, MA On Sunday, September 28th, The Sumaira Foundation (TSF) hosted its inaugural 5K for Rare Neuroimmune Disorders in […]
Read MorePosted by: The Sumaira Foundation in MOGAD, Patient, Voices of TSF
In 2022, my life took an unexpected turn. It all began with a high fever that started on August 31st and lasted for a week. At the time, I was […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of TSF
Me llamo Olga Doncel, tengo 40 años y en este pequeño escrito voy a contar la historia de cómo, sin poder hacer nada, mi vida se partió en dos. Desde […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of TSF
Until my early 30’s I was an active young woman, healthy, exercised regularly, independent, worked full time and loved to travel. I bought a three level townhome, had my own […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On Saturday, August 16, 2025, TSF hosted a Patient Day in Salt Lake City for Rare Neuroinflammatory Disorders in collaboration with the University of Utah Health at University of Utah […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMOSD, Voices of TSF
My name is Roberto and I am a practicing attorney in Barcelona. When I think back to my childhood, one of my clearest memories is chasing my older sister, Rafaela, […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On the 20th of August, Clarinda Cerejo and Rashmi, TSF Ambassadors of India, attended the Rare Diseases Conference 2025, organized by the Federation of Indian Chambers of Commerce and Industry […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On July 26th, 2025, TSF hosted a Patient Day in Chicago for Rare Neuroinflammatory Disorders in collaboration with the Chicago MS Alliance at Rush University Medical Center’s Searle Conference Center. […]
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