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Posted by: The Sumaira Foundation in Autoimmune Encephalitis (AE), Patient, Voices of NMO
In 2023, I was preparing to go to Washington, DC for Rare Disease Week as a Young Adult Rare Representative (YARR) with the EveryLife Foundation for Rare Diseases. I had […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
Nací en Armenia, una ciudad muy pequeña en Colombia. A los 16 años me fuí a Bogotá, la capital, a estudiar estadística en la universidad. Luego me fui a Holanda […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
Hola mi nombre es Anayansi, soy de Panamá y esta es, Mi historia, contada desde mi experiencia. Mi historia de salud empezó muy joven. A los 16 años me diagnosticaron […]
Read MorePosted by: The Sumaira Foundation in CNS Vasculitis, Patient, Voices of NMO
My name is Vanessa, I’m living with CNS vasculitis—and thriving. It’s been a journey marked by uncertainty, grit, and an incredible team of specialists who’ve helped me navigate this rare […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
Hola, soy Gabriela Milagros, me suelen decir “Mily” Cuando fui muy pequeña lamentablemente viví en un entorno no muy agradable, perdí a quien yo consideraba mi madre, mi abuelita con […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
¿Alguna vez has tenido uno de esos sueños en los que, por más que corres, no avanzas? Bueno, pues así es como me he sentido durante los últimos tres años. […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
It was October 2019, I was a young mom at 25 years old toting around a toddler and an infant, and had my hands full in the most beautiful and […]
Read MorePosted by: The Sumaira Foundation in MOGAD, Patient, Voices of NMO
In 2022, my life took an unexpected turn. It all began with a high fever that started on August 31st and lasted for a week. At the time, I was […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
Me llamo Olga Doncel, tengo 40 años y en este pequeño escrito voy a contar la historia de cómo, sin poder hacer nada, mi vida se partió en dos. Desde […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of NMO
Until my early 30’s I was an active young woman, healthy, exercised regularly, independent, worked full time and loved to travel. I bought a three level townhome, had my own […]
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