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Voices of MOG

Andrea & James’ MOG Story – Love Conquers MOG
Andrea & James’ MOG Story – Love Conquers MOG
Published May 1, 2019
Anthy’s MOG Story – Advocating for Answers
Anthy’s MOG Story – Advocating for Answers
It was the Friday before Halloween in 2018. Anthy was on her way home from work when she called her…
Avery’s MOG Story – Racing Against MOG
Avery’s MOG Story – Racing Against MOG
My entire life, I was always a healthy and energetic person… I have played tons of sports and never went…
Brian’s MOG Story – Life Goes On
Brian’s MOG Story – Life Goes On
Life was good in the spring of 2015; no, it was great! In 2012 I completed my master’s degree, which…
Brittney’s MOG-AD Story – #JaidynStrong
Brittney’s MOG-AD Story – #JaidynStrong
My beautiful 4-year-old (5 years old now) daughter Jaidyn woke up one morning in late April 2021 with a headache,…
Danica’s MOGAD story: Living Past the Diagnosis
Danica’s MOGAD story: Living Past the Diagnosis
At 26, my life felt like it was coming together. I was a young professional, full of energy, building my…
David’s MOG Story – Father of a Survivor
David’s MOG Story – Father of a Survivor
When your daughter suddenly goes blind in one eyes, you feel helpless. When the doctors don’t know what it is…
Dr. Farrah Mateen’s Story – A Global Perspective on NMO
Dr. Farrah Mateen’s Story – A Global Perspective on NMO
Like many physician-researchers in my field, I spend a lot of time thinking about NMO, both inside and outside of…
Dr. Michael Levy’s NMO Story – A Physician’s Quest to Find a Cure
Dr. Michael Levy’s NMO Story – A Physician’s Quest to Find a Cure
I was an on-call intern late one night at the Johns Hopkins Hospital when I met a young woman who…
Dr. Ola Marzouk’s Story – From Cairo to Verona: A Neuroimmunological Journey
Dr. Ola Marzouk’s Story – From Cairo to Verona: A Neuroimmunological Journey
The Beginning of the Dream: Why I Chose Neuroimmunology During my daily work as a clinical pathologist specializing in immunology…
Dr. Sara Mariotto’s Story – Bedside to Bench
Dr. Sara Mariotto’s Story – Bedside to Bench
I was a young resident at the University of Verona’s, Neurology Unit when I met a woman with rapidly evolving…
Dr. Tracey Cho’s NMO Story – Teaching Future Neurologists That NMOSD is a “Do Not Miss” Diagnosis
Dr. Tracey Cho’s NMO Story – Teaching Future Neurologists That NMOSD is a “Do Not Miss” Diagnosis
My name is Tracey Cho. I am a neurologist and a teacher. I specialize in autoimmune and infectious neurology, treating…
Dr. Weinshenker’s Story – Witnessing the Transformation of Neuromyelitis Optica
Dr. Weinshenker’s Story – Witnessing the Transformation of Neuromyelitis Optica
My name is Brian Weinshenker and I am a neurologist at the Mayo Clinic in Rochester, MN.  I established a…
Hannah’s MOGAD Story – Braving the Unknown: Healing Through Research
Hannah’s MOGAD Story – Braving the Unknown: Healing Through Research
Back in July 2022, I was fully immersed in motherhood with my two daughters approaching toddlerhood, finally feeling like I…
Historia MOG Bożena – Życie 3.0
Historia MOG Bożena – Życie 3.0
Drogi Czytelniku – chciałabym podzielić się z Tobą naszą bardzo osobistą historią, która zmieniła życie moje i mojego męża.  Bardzo…
Isadora’s MOG Story – Dim Journey to Enlightenment
Isadora’s MOG Story – Dim Journey to Enlightenment
It was December 27, 2022, two days after a quiet but emotionally stressful Christmas in India when I noticed a…
Julia’s MOG Story – Early Signs of a Rare Disease
Julia’s MOG Story – Early Signs of a Rare Disease
Now that I have been diagnosed with Myelin Oligodendrocyte Glycoprotein Antibody-Associated disease, or MOG-Ab disease, I have met others who…
L’histoire de Nelly –  Une vie colorée parce que la vie est belle
L’histoire de Nelly –  Une vie colorée parce que la vie est belle
Je m’appelle Nelly, j’ai 44 ans et je vis dans un joli village dans l’Oise et j’ai la MOGAD.  Sans…
L’histoire de Claire – MOGAD, ma pote bourrée
L’histoire de Claire – MOGAD, ma pote bourrée
La MOGAD est entrée dans ma vie sans prévenir. Au début, c’était presque rien. Une petite tache noire dans mon…
La Historia de Manuel con MOG: Un mal diagnóstico, la vida entre Monet y Picasso, y grandes amigos en el camino
La Historia de Manuel con MOG: Un mal diagnóstico, la vida entre Monet y Picasso, y grandes amigos en el camino
Como todas las semanas, ese lunes me preparé para jugar futbol con los amigos. Salí con prisa, como siempre. ¿Traje…
La historia de MOGAD de Ernesto – Un diagnóstico no es un dictamen
La historia de MOGAD de Ernesto – Un diagnóstico no es un dictamen
Desde los 13 años he practicado deporte de alto rendimiento, pasando por el futbol soccer profesional, correr medias distancias y…
La storia del MOG di Viviana – Sono il suo scudo
La storia del MOG di Viviana – Sono il suo scudo
Ciao a tutti, mi presento, sono la mamma di Auri. Mi piace presentarmi così, perché questa è la sua storia,…
La storia del MOGAD di Clara – Un passo alla volta: la mia lotta contro il MOGAD
La storia del MOGAD di Clara – Un passo alla volta: la mia lotta contro il MOGAD
Era maggio 2023 e mi stavo avvicinando sempre di più alla sessione estiva degli esami. Avevo molti progetti da consegnare,…
La storia del MOGAD di Nour – Dalla luce all’oscurità è solo l’inizio della nuova illuminazione
La storia del MOGAD di Nour – Dalla luce all’oscurità è solo l’inizio della nuova illuminazione
Mi chiamo Nour. Era il primo gennaio del 2023 quando la mattina del primo giorno dell’anno mi sono svegliata con…
La storia di Tito, il punto di vista di una madre
La storia di Tito, il punto di vista di una madre
Questa è la prima volta che racconto pubblicamente la nostra storia. Finora è rimasta in poche parole sussurrate. Ma oggi,…
Laura’s MOG-AD Story – It’s Made Me Who I Am Today
Laura’s MOG-AD Story – It’s Made Me Who I Am Today
It all began with a tremor. It was September 2018, and I was off on maternity leave after having my…
Lisa’s MOG Story – Using Writing & Crafting to Cope With Chronic Disease
Lisa’s MOG Story – Using Writing & Crafting to Cope With Chronic Disease
It was the late 1990’s. I was in my 30’s had constant pain down my left arm, and even though…
Liz’s MOG Story – In Orbit, Flying High
Liz’s MOG Story – In Orbit, Flying High
  Liz has had NMO for 25 years now.  She’s only known it for ten… Since she’d had migraines throughout…
Maureen’s Story – Experiences From the Bedside & Research
Maureen’s Story – Experiences From the Bedside & Research
Maureen is a nurse. She worked in neurocritical care at Johns Hopkins Hospital for many years before she had ever…
Max’s MOG Story – The Luckiest Kid in the World
Max’s MOG Story – The Luckiest Kid in the World
On a warm February evening at the University of Miami, I sat in my Music Business lecture and wondered from…
Mouli’s MOGAD Story – Smiling Through the Storm
Mouli’s MOGAD Story – Smiling Through the Storm
In 2022, my life took an unexpected turn. It all began with a high fever that started on August 31st…
Nakeshia’s MOG Story – Finding Purpose Amidst the Darkness
Nakeshia’s MOG Story – Finding Purpose Amidst the Darkness
Every day we wake up, we surely never expect our day to end with everything turned upside down – and…
Nuestra Historia: Tomás Morales Sánchez, Una Batalla Que No Elegimos Pero Que Enfrentamos Con Amor
Nuestra Historia: Tomás Morales Sánchez, Una Batalla Que No Elegimos Pero Que Enfrentamos Con Amor
Mi nombre es Ángela Sánchez Berrio, y quiero compartir con ustedes la historia de mi hijo Tomás Morales Sánchez, con…
Scott’s MOG Story – Personal Accountability to Advocating for Others
Scott’s MOG Story – Personal Accountability to Advocating for Others
On Monday, I woke up with a slight ache on the left side of my lower back which felt numb,…
Therese Burke’s Story – IMPROVING CARE THROUGH PATIENT PARTNERSHIPS
Therese Burke’s Story – IMPROVING CARE THROUGH PATIENT PARTNERSHIPS
It was over a decade ago, but I remember it like yesterday, the first patient I looked after with NMOSD.…
Virginia’s MOG story – A little child shall lead them Isaiah 11.6
Virginia’s MOG story – A little child shall lead them Isaiah 11.6
Virginia was only 10 when, while checking the mail one day in April, she noticed a grayness in her vision,…
Yoka’s MOG Story – My Dutch MOG Story
Yoka’s MOG Story – My Dutch MOG Story
Clean and clear were my glasses but still I had trouble seeing clearly with my right eye. On Easter Monday…