Generalidades de Encefalitis Autoinmune
Con motivo del Día Mundial de la Encefalitis 2026, nos complace contar con la participación de la Dra. Nicole Somerville Briones, quien ofrecerá una visión general de la encefalitis autoinmune […]
Con motivo del Día Mundial de la Encefalitis 2026, nos complace contar con la participación de la Dra. Nicole Somerville Briones, quien ofrecerá una visión general de la encefalitis autoinmune […]
Are you or your loved one impacted by MG*, MOGAD* or NMOSD*? TSF is inviting patients and caregivers impacted by rare neuroinflammatory disorders from all over Hawaii to join us […]
Un espacio en español para que pacientes de enfermedades neuroinmunes raras como NMOSD, MOGAD, etc expresen sus emociones.
In honor of Rare Disease Day 2026, join us for a special Meet the Author fireside chat on February 26th at 7:00 PM EST. We’re honored to welcome Jayne Mattingly, […]
Wir kommen nach Berlin! Sind Sie oder Ihre Angehörigen von einer der folgenden Erkrankungen betroffen: Autoimmunenzephalitis, Myasthenia gravis, MOGAD oder Neuromyelitis-optica-Spektrum-Erkrankung? Wir laden Patienten, Angehörige und medizinisches Fachpersonal aus der […]
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and […]
In soli cinque anni, la comunità NMOSD è passata da zero terapie approvate a quattro — un traguardo straordinario, soprattutto considerando che solo circa il 5% delle malattie rare dispone […]
A recent study, “Real‑World Efficacy and Safety of Neuromyelitis Optica Spectrum Disorder Disease‑Modifying Treatments,” showed that in routine practice, approved NMOSD therapies reduce relapse rates and offer better safety than […]
L’AQP4 (Aquaporina-4) è una proteina presente nel cervello, nel midollo spinale e nei nervi ottici che aiuta a regolare il movimento dell’acqua dentro e fuori dalle cellule. Nella NMOSD, il […]
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and […]
Los cuidadores de personas con condiciones neuroinmunes raras como NMOSD y MOGAD necesitan un espacio para contar sus experiencias. Este espacio para cuidadores es dirigido por un cuidador de Colombia y su esposa, embajadora y paciente NMOSD de Colombia (Juan Pablo e Ingrid).
Il tuo bambino ha ricevuto una diagnosi di NMOSD o MOGAD? Ti stai chiedendo come la diagnosi potrebbe influire sul suo sviluppo cognitivo? Unisciti a noi martedì 29 aprile alle […]
