Posted by: The Sumaira Foundation in Events, News & Announcements
You’re invited to attend an exclusive summer event to Celebrate 8 Years of TSF Thursday, July 28 @ at 6:30 PM The Envoy Hotel Lookout Rooftop & Bar (70 Sleeper St, Boston, MA 02210, overlooking Boston’s financial district) With your support, over the past 8 years the foundation has: Awarded $500,000+ to NMO/MOG-AD research Shared 130 Voices of NMO/MOG […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
August 13, 2021 — The Sumaira Foundation (TSF) is pleased to welcome Jennifer van Amerom to its Board of Directors as the foundation’s first country manager. An NMOSD patient herself, Jennifer will be leading and executing the TSF mission in Canada. She joined the organization’s team in fall 2020 as the TSF Ambassador of Ontario. […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Today this is where I am – right here and right now. God has a plan, yesterday is gone and tomorrow may never be – It’s up to me as to how I make the best of it. Much, much more of the story of “NMO & Me” to unfold, as Dr. Will Meador, one […]
Read MorePosted by: The Sumaira Foundation in Events
The 4th Annual NMO Awareness Gala SATURDAY, MARCH 23, 2019 | DOORS OPEN AT 7:00PM MANDARIN ORIENTAL, GRAND BALLROOM (BOSTON, MA) You’re invited to our enchanted forest-themed annual event so get your pixie dust + fairy vibes ready for our most fabulous fundraiser yet! Proceeds will be awarded to TSF Spark Grant recipients for research […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Jamie was diagnosed with Non-Hodgkins Lymphoma at the age of 35. Her condition was such that she didn’t need treatment, just monitoring. She was even healthy enough to have a second child. After the birth, though, she was put on Rituximab for the lymphoma, once a week for four weeks. Two years later, one night […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
This disease began with hiccups and vomiting 25+ times a day. I was certain that I had gotten food poisoning or had the flu. Later, I learned that things would get much worse before they got better. I could no longer work because it was difficult for me to even get out of bed. After […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On October 11, 2018, The Sumaira Foundation for NMO (TSF) announced its partnership with the Transverse Myelitis Association (TMA). Both organizations specialize in raising awareness for rare neuro-immune disorders while supporting patients and their caregivers. The spectrum of diseases include but are not limited to neuromyelitis optica (NMO), transverse myelitis (™), optic neuritis (ON), myelin […]
Read MorePosted by: The Sumaira Foundation in NMO, Professional, Voices of NMO
My name is Brian Weinshenker and I am a neurologist at the Mayo Clinic in Rochester, MN. I established a career as an MS specialist and have had an interest in conditions that mimic MS and issues relating to the accuracy of MS diagnosis. Neurologists have no specific tests for MS; a diagnosis is established […]
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