Posted by: The Sumaira Foundation in News & Announcements
December 16, 2019 — The Sumaira Foundation for NMO (TSF) and The Elliot Lewis Center are pleased to announce their partnership as of December 2019. The organizations have a shared mission to enhance care and treatment of patients with neuromyelitis optica. The Sumaira Foundation for NMO TSF is a 501(c)(3) organization founded by an NMO […]
Read MorePosted by: The Sumaira Foundation in Events
The theme for Gala 2020 is “old Hollywood” in celebration of the premiere of our 5-year impact video! We’ve set an ambitious goal to raise $100,000 to fund innovative, groundbreaking NMO research through TSF’s SPARK & Unicorn Grants. Lauren Michaels & Gaetano Morello & HOST COMMITTEE Zachary Cohen | Sara Marsh | William […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
December 5, 2019 – The Sumaira Foundation for NMO is pleased to welcome Joshua Katz, MD to its medical advisory board. Joshua Katz, MD Dr. Joshua Katz is the Co-Director of the Elliot Lewis Center in Wellesley, which treats over 2,500 patients with multiple sclerosis, neuromyelitis optica, anti-MOG antibody syndrome, and other CNS demyelinating diseases. […]
Read MorePosted by: The Sumaira Foundation in Events
The 4th Annual NMO Awareness Gala SATURDAY, MARCH 23, 2019 | DOORS OPEN AT 7:00PM MANDARIN ORIENTAL, GRAND BALLROOM (BOSTON, MA) You’re invited to our enchanted forest-themed annual event so get your pixie dust + fairy vibes ready for our most fabulous fundraiser yet! Proceeds will be awarded to TSF Spark Grant recipients for research […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
The Sumaira Foundation for NMO (TSF) is proud to announce the launch of the TSF Ambassador Program by introducing the inaugural ambassador, Phil Tucker. Phil is an NMO warrior from Maine who will play a key role in maximizing NMO awareness and TSF’s footprint in his native state. The Ambassador Program is an initiative for […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
On Monday morning, Pam had a headache. For a woman who never got headaches, this was notable. In addition, when she turned her eyes right and left, she experienced eye pain. She took some ibuprofin, and went to the office, where she worked as a dental hygienist. On Friday, Pam had an existing appointment […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Sumaira’s NMO Story From the Transverse Myelitis Association blog, In Their Own Words (October 4, 2018) My name is Sumaira and I am the founder and executive director of The Sumaira Foundation for NMO and Miss Bangladesh-USA 2015. Thank you for taking the time to read my story. It all started in June 2014. I was a perfectly […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Here is my story of how I was diagnosed with Neuromyelitis Optica and just how scary it can be knowing that something is wrong but not being able to find out what that something is. I am not one to share my emotions. The last 15 months have harbored some of the scariest times of […]
Read MorePosted by: The Sumaira Foundation in Events
The 3rd Annual NMO Awareness Gala SATURDAY, MARCH 24, 2018 | DOORS OPEN AT 7:00PM MANDARIN ORIENTAL, GRAND BALLROOM (BOSTON, MA) You’re invited to the first-ever Bollywood theme* black-tie gala in Boston! MUSICAL ENTERTAINMENT BY DJ RISHI BAWA | HENNA ART BY MADHU NARAYAN + ABBY BURKE | FEATURING AUCTION + RAFFLE PRIZES FROM TESLA, BOSTON LASER, MANDARIN ORIENTAL, DAVID YURMAN, […]
Read MorePosted by: The Sumaira Foundation in Events
Thank you to everyone who made the 2nd New England NMO Patient Day a spectacular day! Special thanks to: Brigham and Women’s Hospital Massachusetts General Hospital The Guthy-Jackson Charitable Foundation Foundation for Neurologic Diseases Dr. Brian Weinshenker (Mayo Clinic) Lindsay Lucas + company Osakpolo Igiede View album
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