Posted by: The Sumaira Foundation in News & Announcements
August 18, 2020 – The Sumaira Foundation is pleased to present NMOSD/MOG-AD Support Groups & Pages Our team hopes that this document will serve as a valuable resource to our small but mighty community! A clickable PDF version is available: NMOSD/MOG-AD Support Groups & Pages This list has been compiled by Lelainia Lloyd, TSF Ambassador […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
November 13, 2019 – The Sumaira Foundation for NMO (TSF) and The MOG Project announced their partnership on November 13, 2019 in their shared mission to raise awareness for myelin oligodendrocyte glycoprotein antibody-associated disease (MOG-AD). Since its nascence, TSF has focused on raising awareness and funds for neuromyelitis optica. In mid 2019, the organization shared […]
Read MorePosted by: The Sumaira Foundation in Events
On June 22, 2019, The Sumaira Foundation for NMO hosted its inaugural NMO Wellness Day, a day-long community event oriented to foster discussions around health and wellness as they relate to neuromyelitis optica. This event was sponsored by Alexion Pharmaceuticals, Inc. with delicious + healthy lunch provided by B.GOOD at Spaulding Rehabilitation Hospital. (Click on the images below […]
Read MorePosted by: The Sumaira Foundation in Patient, TM, Voices of NMO
My name is Arif and I am from Jhansi, a historic city located in the northern part of India. This is my TM story… I was in my final year of pursuing an MBA (Masters of Business Administration) at Pioneer Institute of Professional Studies (PIPS) in Indore when it all happened. In August 2010, I […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO
I was diagnosed with Neuromyelitis Optica in June of 2012 after two hospitalizations totaling 5 months, during which I lost all my strength, ability to move and all feeling from my chest down… My first symptoms, during August and September of 2011, were nausea and vomiting. Nowadays, I know that those are very peculiar characteristics […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMO, Voices of NMO
My name is Jamie and I am Adam’s partner of 17 years. This is Adam’s NMO story from my perspective… Everything was perfect in our lives; Adam had a good job and we were looking for our first home to purchase with our two young sons. Things could not have been any better…. Adam’s story […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
I have never been a person that likes to sit still; I don’t even like going to the movies. If it was up to me, I would run from location to location so that I can get there faster. I was a runner in high school, in college and I have completed 4 marathons, qualifying […]
Read MorePosted by: The Sumaira Foundation in Events
We are hosting our first black-tie event, NMO Awareness Gala at the beautiful Liberty Hotel Ballroom. Please join us for an evening filled with delicious food and beverages, DJ and dancing, photos, and a swag bag filled with amazing goodies all while raising awareness for Neuromyelitis Optica. Two raffle tickets will be given to every attendee upon […]
Read MorePosted by: The Sumaira Foundation in Events
We hosted our 1st fundraiser on Sunday, February 8th 2015 at the beautiful ROW34 in Fort Point, Boston. It was a major success with 50 guests in attendance despite the inclement weather. I’m so excited to announce that we were able to raise $2,345 that will be put towards developing programs for patient support and […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
It began like a pain unlike any other. In 2009, and during my sophomore year of college, I was sitting in class when the shooting pain down my back began. It was as if someone took hot metal spikes and drug it slowly down my spine. Terrified, I never told anyone what I was going […]
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