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Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
May 15, 2021 – a date I’ll never forget, but I didn’t know then that it would change my life in such a drastic way… I woke up feeling nauseous, […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
I am Preethi, residing in Coimbatore, famously known as the Manchester of South India. This narrative is a chronicle of my journey, one that reflects my triumph over adversities and […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My name is Kailee. I am a mom, wife, daughter, teacher, dance instructor, and I have neuromyelitis optica spectrum disorder (NMOSD). I was diagnosed at 25 years old, in May […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
At age eight, when I first started chemotherapy for my autoimmune disease, the neurologist told my parents the maximum amount of time I could be on it was three years, […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
The year was 2007 and I had just returned to school from summer break, twelve years old and excited to start the 7th grade with new classmates and new opportunities. […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMO, Professional, Voices of NMO
I am a caregiver to my daughter, Nell, who was diagnosed with NMO at age 9. Prior to her diagnosis, she was an active, vibrant girl playing travel lacrosse, robustly […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Nel mese di marzo 2012 avevo appena trovato lavoro a più di 60 chilometri da casa ma era il lavoro per il quale avevo appena terminato gli studi ed ero […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
In February 2020, I started having weakness, numbness, burning, and pain on both sides of my body, starting with my feet but rapidly progressing to the rest of my body. […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMO, Voices of NMO
Modern medicine in the United States was a complete failure. For six weeks, the hospitals, doctors, and many lab tests couldn’t piece a single clue together… It was 2018, and […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
这是一个有关中国NMO之家联合创始人小高从病痛中“站起来”，重新出发去寻找生命意义的故事。现在，他期待着NMO病友大会在中国举办，期待着与TSF共同用我们的努力照亮NMO和MOG患者的世界。他说他还会继续在NMO病友会的建设上走很远很远的路，直到医学领域发现治愈的光芒，直到病友们能摆脱疾病带来的痛苦，直到NMO和MOG病友们都能重新拾起对世界的热爱…
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