News & Events

NMOSD Therapies Chart

January 8, 2021 — Since 2019, our small but mighty and growing community has seen three FDA-approved therapies. At TSF, we’re huge advocates for shared-decision making between patients and their physicians, especially when it comes to deciding what treatment(s) to opt for. The Sumaira Foundation for NMO is pleased to announce its launch the first-of-its-kind… Read More

 


Understanding the Canadian NMOSD Journey

November 25, 2020 — The Sumaira Foundation for NMO is pleased to present “Understanding the Canadian NMOSD Journey”, a 6-part live webinar series featuring Canadian patients, caregivers, clinicians, researchers, and advocates in which a variety of disease-related topics will be discussed. Our premiere webinar will feature the nation’s first NMOSD patient who successfully gave birth… Read More

 


2020 Grant Recipients

November 9, 2020 – We are proud to announce the grant recipients of TSF’s 2020 research grants. Congratulations to our recipients who received $25,000 to initiate their projects! Diagnostics in NMOSD Farrah Mateen, MD, PhD | Massachusetts General Hospital (Boston, MA) Aim: To pilot a novel point-of-care dry blood spot diagnostic test for patients with… Read More

 


NMOSD / MOG-AD Support Groups & Pages

August 18, 2020 – The Sumaira Foundation for NMO is  pleased to present NMOSD / MOG-AD Support Groups & Pages Our team hopes that this document will serve as a valuable resource to our small but mighty community! A clickable PDF version is available. Simply click the yellow call-to-action button that reads, Support Groups & Pages,… Read More

 


Welcome Dr. Stacey Clardy!

July 29, 2020 – The Sumaira Foundation for NMO is pleased to welcome Stacey Clardy, MD, PhD to its medical advisory board. Stacey Clardy, MD, PhD Dr. Clardy is Associate Professor of Neurology with tenure at the University of Utah in the Division of Neuroimmunology within the Department of Neurology and Staff Neurologist at the… Read More