NMO Awareness Month with TSF!
Let’s celebrate! March is NMO Awareness Month and we’re proud to share all of the ways you can get involved and help illuminate the darkness of neuromyelitis optica Join the Campaign Our #IYKYK NMO campaign will last all month long! Be part of the campaign by downloading and sharing our custom media assets on your social… Read More
RESEARCH | Light the Path Forward Grant
February 16, 2021 – The Sumaira Foundation for NMO (TSF) is pleased to announce the Light the Way Forward Grant made possible by a research grant from Viela Bio. Viela Bio is establishing the Light the Way Forward Grant to fuel research aimed to improve understanding of neuromyelitis optica spectrum disorder (NMOSD) and positively impact… Read More
NMOSD Therapies Chart
January 8, 2021 — Since 2019, our small but mighty and growing community has seen three FDA-approved therapies. At TSF, we’re huge advocates for shared-decision making between patients and their physicians, especially when it comes to deciding what treatment(s) to opt for. The Sumaira Foundation for NMO is pleased to announce its launch the first-of-its-kind… Read More
Understanding the Canadian NMOSD Journey
November 25, 2020 — The Sumaira Foundation for NMO is pleased to present “Understanding the Canadian NMOSD Journey”, a 6-part live webinar series featuring Canadian patients, caregivers, clinicians, researchers, and advocates in which a variety of disease-related topics will be discussed. Our premiere webinar will feature the nation’s first NMOSD patient who successfully gave birth… Read More
2020 Grant Recipients
November 9, 2020 – We are proud to announce the grant recipients of TSF’s 2020 research grants. Congratulations to our recipients who received $25,000 to initiate their projects! Diagnostics in NMOSD Farrah Mateen, MD, PhD | Massachusetts General Hospital (Boston, MA) Aim: To pilot a novel point-of-care dry blood spot diagnostic test for patients with… Read More