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News & Events

Celebrate MOG-AD Awareness Month!

Posted by: The Sumaira Foundation in News & Announcements

Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease (MOG-AD) In 2014, The Sumaira Foundation (TSF) launched to raise awareness of neuromyelitis optica spectrum disorder (NMOSD) and create a community of people brought together through shared experiences.  As our network of patients, caregivers and supporters grew, the science was evolving.  Researchers found patients who exhibited the same signs and […]

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Event Recap | 5th NMO Awareness Gala

Posted by: The Sumaira Foundation in Events

375 guests. $220K raised for research. 22 patients from 15 cities in 2 countries. On Saturday, March 26, 2022, 375 guests gathered for the 5th Annual NMO Awareness Gala at the Mandarin Oriental in Boston. We set an ambitious fundraising goal and are proud to have raised $220,000 for NMO/MOG research thanks to our generous donors, […]

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Welcome Dr. Joachim Havla!

Posted by: The Sumaira Foundation in News & Announcements

February 10, 2022 – The Sumaira Foundation is pleased to welcome Dr. Joachim Havla of LMU Klinikum (Ludwig Maximilian University of Munich) as the first neurologist from Germany to join TSF’s medical advisory board. Dr. Joachim Havla Dr. Joachim Havla is a neurologist and senior physician at the Institute of Clinical Neuroimmunology at the LMU […]

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5th NMO Awareness Gala

Posted by: The Sumaira Foundation in Events

You are invited to attend TSF’s old Hollywood-themed 5th NMO Awareness Gala Saturday, March 26, 2022 at 7 PM Mandarin Oriental, Boston We’ve set an ambitious goal to raise $250,000 to fund innovative, groundbreaking NMOSD/MOG-AD research through TSF’s SPARK & Unicorn Grants. Click here to view the research we’ve been able to fund thanks to […]

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2021 TSF Grant Recipients

Posted by: The Sumaira Foundation in News & Announcements

December 1, 2021 — The Sumaira Foundation is proud to announce the grant recipients of TSF’s 2021 SPARK and Unicorn grants. Congratulations to our 5 recipients who each received $25,000 to initiate their research projects! HLA Association in Pediatric MOG-AD, NMOSD, and ADEM 2021 Unicorn Grant recipient Nusrat Ahsan, MD | Children’s Hospital of Los […]

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Welcome Professor Romain Marignier!

Posted by: The Sumaira Foundation in News & Announcements

November 22, 2021 – The Sumaira Foundation is pleased to welcome Professor Romain Marignier as the 1st international NMO specialist to join TSF’s medical advisory board. Romain Marignier, MD Pr. Romain Marignier is a neurologist (MD), professor at the Neurological Hospital of Lyon, France. His areas of expertise include neuro-inflammatory disorders of the central nervous […]

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Welcome Michael Devlin!

Posted by: The Sumaira Foundation in News & Announcements

October 15, 2021 — The Sumaira Foundation for NMO is pleased to welcome Michael Devlin to its Board of Directors. Michael Devlin Michael has spent most of his career focused on the health care sector. He worked over 15 years at McKinsey & Company, where as a senior partner based in Tokyo he led their […]

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Welcome Stephanie Hamzo!

Posted by: The Sumaira Foundation in News & Announcements

September 21, 2021 — The Sumaira Foundation for NMO is pleased to welcome Stephanie Hamzo to its board of directors. Stephanie Hamzo With a true passion for patients, and dedication to connecting patients/caregivers in need of resources and support, Stephanie Hamzo has built her career in rare and ultra-rare disease communities. Throughout many roles she […]

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