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Un espacio en español para que pacientes de enfermedades neuroinmunes raras como NMOSD, MOGAD, etc expresen sus emociones.
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| 0 events, | 1 event, - Un espacio en español para que pacientes de enfermedades neuroinmunes raras como NMOSD, MOGAD, etc expresen sus emociones. | 0 events, | 1 event, -  In honor of Rare Disease Day 2026, join us for a special Meet the Author fireside chat on February 26th at 7:00 PM EST. We’re honored to welcome Jayne Mattingly, author of “This is Body Grief”, in conversation with Taylor Ann Macey, NMOSD patient and TSF Ambassador. Their discussion will explore chronic illness, advocacy and […] | 0 events, | 0 events, | 0 events, |
| 0 events, | 0 events, | 0 events, | 0 events, | 0 events, | 1 event, -  Wir kommen nach Berlin! Sind Sie oder Ihre Angehörigen von einer der folgenden Erkrankungen betroffen: Autoimmunenzephalitis, Myasthenia gravis, MOGAD oder Neuromyelitis-optica-Spektrum-Erkrankung? Wir laden Patienten, Angehörige und medizinisches Fachpersonal aus der […] | 0 events, |
| 0 events, | 0 events, | 0 events, | 0 events, | 0 events, | 0 events, | 1 event, -  The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and […] |
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| 0 events, | 1 event, -  In soli cinque anni, la comunità NMOSD è passata da zero terapie approvate a quattro — un traguardo straordinario, soprattutto considerando che solo circa il 5% delle malattie rare dispone […] | 0 events, | 1 event, -  A recent study, “Real‑World Efficacy and Safety of Neuromyelitis Optica Spectrum Disorder Disease‑Modifying Treatments,” showed that in routine practice, approved NMOSD therapies reduce relapse rates and offer better safety than […] | 0 events, | 0 events, | 0 events, |
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