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UID:21638-1781953200-1781974800@www.sumairafoundation.org
SUMMARY:Rochester Patient Day for Rare Neuroinflammatory & Related Disorders
DESCRIPTION:TSF is inviting patients and caregivers impacted by rare neuroinflammatory & related disorders from Minnesota and the upper Midwest region! \n\n\n\nWe’re coming to Rochester! \nAre you or your loved one impacted by: AE*\, CIDP*\, MG*\, MOGAD*\, NMOSD*\, or SPS*? You’re invited to our event on Saturday\, June 20th. \nJoin us for a day of education\, community and fun to: \n\nMeet local patients\, partners\, care-partners and clinicians\nAsk experts questions in real time about symptom management\, treatments and therapies\, comorbidities and more\nLearn about updates on the latest research and findings from local key opinion leaders\n\nThis event is being organized in collaboration with Dr. Eoin Flanigan (Mayo Clinic Rochester) and Dr. John Chen (Mayo Clinic Rochester) and in partnership with Autoimmune Encephalitis Alliance\, MG Holistic Society and The Stiff Person Syndrome Research Foundation. \nRegistration is free and lunch will be served. \nChildcare services will be available throughout the duration of the day. \nWe can’t wait to see you in Rochester! \nhttps://www.eventbrite.com/e/rochester-patient-day-for-rare-neuroinflammatory-related-disorders-tickets-1986578610100 \nThe Sumaira Foundation team \n— \nAE stands for autoimmune encephalitis \nCIDP stands for chronic inflammatory demyelinating polyneuropathy \nMG stands for myasthenia gravis \nMOGAD stands for myelin oligodendrocyte glycoprotein antibody-associated disorder \nNMOSD stands for neuromyelitis optica spectrum disorder \nSPS stands for stiff person syndrome
URL:https://www.sumairafoundation.org/event/rochester-patient-day-for-rare-neuroinflammatory-related-disorders/
LOCATION:Mayo Civic Center\, 30 Civic Center Drive Southeast\, Rochester\, MN\, 55904\, United States
CATEGORIES:Community Event,TSF Patient Day
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260622T200000
DTEND;TZID=America/New_York:20260622T210000
DTSTAMP:20260618T191209
CREATED:20260502T162713Z
LAST-MODIFIED:20260502T162713Z
UID:21967-1782158400-1782162000@www.sumairafoundation.org
SUMMARY:HCP presents Mental Health Mondays
DESCRIPTION:The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients\, caregivers\, and loved ones ride the rollercoaster of feelings throughout their daily lives\, from the moment of symptom onset. Often\, getting the proper diagnosis is a journey of its own\, and dealing with life’s difficulties after that can include stressors that only others in your situation may understand. These meetings will offer a safe space for people to come together\, share their stories\, and highlight how they are coping with everyday challenges. We will discuss a range of mental health topics and have occasional special guest speakers join our meetings. So\, whether you are newly diagnosed or a seasoned zebra\, we hope to provide a space to help guide personal growth.
URL:https://www.sumairafoundation.org/event/hcp-presents-mental-health-mondays-2/
LOCATION:Virtual: United States\, United States
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/05/Mental-Health-Monday-.png
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DTSTART;TZID=America/New_York:20260624T200000
DTEND;TZID=America/New_York:20260624T210000
DTSTAMP:20260618T191209
CREATED:20260602T153817Z
LAST-MODIFIED:20260602T154037Z
UID:22230-1782331200-1782334800@www.sumairafoundation.org
SUMMARY:Vivir bien con NMOSD: Cómo manejar los desafíos físicos\, mentales y sociales
DESCRIPTION:Vivir con NMOSD puede afectar muchos aspectos de la vida diaria: física\, emocional y socialmente. \nÚnase a TSF LatAm para un importante seminario web\, “Vivir bien con NMOSD: Cómo manejar los desafíos físicos\, mentales y sociales”\, enfocado en ayudar a pacientes y familias a comprender y afrontar mejor estos desafíos. \nEste programa contará con la participación de la Dra. Adriana Casallas Vanegas (Colombia) y la Dra. Felisa Leguizamón (Argentina)\, y será moderado por Lizzy\, paciente con NMOSD y Embajadora de TSF en México. Juntas\, conversarán sobre estrategias para manejar los síntomas\, cuidar el bienestar mental\, mejorar la calidad de vida y fortalecer las redes de apoyo mientras se vive con NMOSD. \n– 24 de junio de 2026 \n– 7PM COT / 9PM ART \nhttps://us02web.zoom.us/webinar/register/WN_nsxeD-TRRxaMS_YqbHPIRw \nQuienes asistan en vivo tendrán la oportunidad de hacer preguntas directamente a las expertas durante la sesión.
URL:https://www.sumairafoundation.org/event/vivir-bien-con-nmosd-como-manejar-los-desafios-fisicos-mentales-y-sociales/
LOCATION:Virtual: Colombia\, Colombia
CATEGORIES:From The Experts
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/06/Felisa-Leguizamon-and-Adriana-Casallas-Vanegas.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260625T200000
DTEND;TZID=America/New_York:20260625T210000
DTSTAMP:20260618T191209
CREATED:20260508T200046Z
LAST-MODIFIED:20260610T145856Z
UID:21994-1782417600-1782421200@www.sumairafoundation.org
SUMMARY:Understanding Step Therapy: How Insurance Decisions Shape Neuroimmune Treatment
DESCRIPTION:Understanding insurance coverage can be overwhelming\, especially when treatment decisions are impacted by policies like step therapy. Join us Thursday\, June 25 at 5:00 PM PT / 8:00 PM ET for an important conversation with Dr. Rosemarie Walch about how insurance requirements can influence access to care for people living with rare neuroimmune disorders. \nIn this webinar\, Understanding Step Therapy: How Insurance Decisions Shape Neuroimmune Treatment\, Dr. Walch will explain what step therapy is\, why it exists\, and how it can affect treatment timelines\, medication access\, and patient outcomes. Attendees will also learn practical strategies for navigating insurance barriers\, advocating for appropriate care\, and working with their healthcare teams throughout the process. \nThose who attend live will have the opportunity to ask questions during the session. \nMade possible with support from Amgen.
URL:https://www.sumairafoundation.org/event/understanding-step-therapy-how-insurance-decisions-shape-neuroimmune-treatment/
LOCATION:Virtual: Global
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/05/Rosemarie-Walch-1.png
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