BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//The Sumaira Foundation - ECPv6.18.0//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:The Sumaira Foundation
X-ORIGINAL-URL:https://www.sumairafoundation.org
X-WR-CALDESC:Events for The Sumaira Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/Bogota
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0500
TZNAME:-05
DTSTART:20250101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Africa/Johannesburg
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0200
TZNAME:SAST
DTSTART:20250101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20261024T120000
DTEND;TZID=America/Bogota:20261024T140000
DTSTAMP:20261012T225813Z
CREATED:20261009T204125Z
LAST-MODIFIED:20261012T225813Z
UID:10000505-1792843200-1792850400@www.sumairafoundation.org
SUMMARY:Mas alla del diagnóstico de la NMOSD Panel de Expertos : perspectivas multidisciplinarias para un cuidado integral
DESCRIPTION:El manejo del Trastorno del Espectro de la Neuromielitis Óptica (NMOSD) ha estado centrado de forma casi exclusiva en el control del brote agudo y la inmunosupresión. \nSin embargo\, el paciente convive las 24 horas del día con el impacto físico\, cognitivo y emocional de la enfermedad. \nEste encuentro busca romper con esa visión y propone un abordaje integral al reunir a quince expertos de distintas disciplinas : neurología\, investigación clínica\, sexología\, kinesiología\, salud mental\, fonoaudiología entre otros. El objetivo es transmitir un mensaje claro: el bienestar real no se logra únicamente apagando la inflamación del sistema nervioso\, sino acompañando al paciente en todas las esferas de su cotidianidad. \nhttps://us02web.zoom.us/webinar/register/WN_qJPifmNLRjqY9IgQcmQCPQ
URL:https://www.sumairafoundation.org/event/mas-alla-del-diagnostico-de-la-nmosd-panel-de-expertos-perspectivas-multidisciplinarias-para-un-cuidado-integral/
CATEGORIES:From The Experts,TSF Webinar
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2026/10/Eugenia-Balbuena.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261026T200000
DTEND;TZID=America/New_York:20261026T210000
DTSTAMP:20260902T162513Z
CREATED:20260902T162513Z
LAST-MODIFIED:20260902T162513Z
UID:10000497-1793044800-1793048400@www.sumairafoundation.org
SUMMARY:HCP presents Mental Health Mondays
DESCRIPTION:The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients\, caregivers\, and loved ones ride the rollercoaster of feelings throughout their daily lives\, from the moment of symptom onset. Often\, getting the proper diagnosis is a journey of its own\, and dealing with life’s difficulties after that can include stressors that only others in your situation may understand. These meetings will offer a safe space for people to come together\, share their stories\, and highlight how they are coping with everyday challenges. We will discuss a range of mental health topics and have occasional special guest speakers join our meetings. So\, whether you are newly diagnosed or a seasoned zebra\, we hope to provide a space to help guide personal growth.
URL:https://www.sumairafoundation.org/event/hcp-presents-mental-health-mondays-6/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/png:https://www.sumairafoundation.org/wp-content/uploads/2025/10/HCP-Master-169-Facebook-Cover-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Johannesburg:20261028T120000
DTEND;TZID=Africa/Johannesburg:20261028T130000
DTSTAMP:20260915T125622Z
CREATED:20260915T125622Z
LAST-MODIFIED:20260915T125622Z
UID:10000501-1793188800-1793192400@www.sumairafoundation.org
SUMMARY:TSF's Human Collective Project - Africa
DESCRIPTION:The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020\, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced unveiled a great need and opportunity for us to connect in a meaningful way to offer our support to one another. Since 202\, we have expanded the program to offer more sessions in multiple geographies to ensure that everyone in the Rare Neuroimmune community feels welcomed and included. As we always say\, HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh\, cry\, vent\, share wins\, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
URL:https://www.sumairafoundation.org/event/tsfs-human-collective-project-africa-2/
LOCATION:Virtual: Global
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://www.sumairafoundation.org/wp-content/uploads/2026/07/HCP-Master-169-Facebook-Cover.jpg
END:VEVENT
END:VCALENDAR