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2023 RARE Patient Advocacy Summit

Each year, Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies at the RARE Patient Advocacy Summit.

Event Series Human Collective Project | Africa

HCP South Africa

Virtual: South Africa , South Africa

The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 […]

Event Series Human Collective Project

TSF’s Human Collective Project Meetings

Virtual: United States , United States

The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]

Event Series From The Experts

MOGAD – Pytania Pacjentów – Odpowiedzi Specjalisty

Virtual: Poland , Poland

Po raz pierwszy w Polsce na pytania pacjentów dotyczące MOGAD odpowie dr hab. Maciej Juryńczyk, Ordynator Oddziału Neurologicznego w Szpitalu Wolskim w Warszawie, neurolog specjalizujący się w leczeniu tej rzadkiej choroby neurologicznej. Zapraszamy serdecznie do wysłuchania naszej rozmowy wszystkich zainteresowanych, a w szczególności osoby borykające się z objawami neurologicznymi i szukające diagnozy. Program ten jest […]

HCP DK with participation of dr. Nasrin Asgari

Virtual: Danmark , Denmark

Kære NMOSD og MOGAD patienter og pårørende.   Vi er glade for at invitere dig til et særligt Zoom-møde med den ansete professor-neurolog af syddansk Universitet, Dr. Nasrin Asgari.   Dr. Nasrin Asgari, en fremtrædende neurolog med omfattende ekspertise i NMOSD og MOGAD, slutter sig til os som en særlig gæst. Hendes værdifulde indsigt og […]

Industry Partners

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