We are excited to launch TSF's first-ever global Human Collective Project meeting! Join us on Saturday, December 3rd at 10 AM EST / 4 PM CET for a support group meeting with NMOSD/MOGAD patients and caregivers from all over the world. This special monthly group will be hosted by, Candice Galvan, NMOSD Caregiver, Colorado Ambassador, […]
Join us for an online social hour hosted by Aidan M. for those in their 20’s and 30’s with ADEM, AFM, MOGAD, NMOSD, ON, or TM! Connect with others and discuss what it’s like living with a rare neuroimmune disorder during the transitions of young adulthood. Ask questions, share your stories, or just listen – […]
You're invited to join TSF's next book club meeting on November 29th, during which we'll discuss "Being Mortal" by Dr. Atul Gawande. From Atul Gawande, a book that has the potential to change medicine – and lives. Through eye-opening research and gripping stories of his own patients and family, Gawande reveals the suffering this dynamic […]
Unisciti a noi mercoledì 14 dicembre per il 1° webinar italiano della Fondazione Sumaira con la dott.ssa Sara Mariotto, neurologa ed esperta di NMOSD/MOGAD che discuterà e risponderà alle domande sulle somiglianze e le differenze tra NMOSD e MOGAD. I partecipanti avranno l'opportunità di porre domande alla Dr. ssa Mariotto dal vivo ed in italiano. […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOG-AD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOG-AD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOG-AD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOG-AD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
You're invited to join TSF's 1st live webinar of 2023 - Understanding Clinical Trials for MOGAD & the Importance of Patient Participation - on Friday, January 6th featuring Dr. Michael Levy who will share updates about ongoing clinical trials for patients living with MOGAD. Additionally, we will discuss the importance and value of patient participation […]
The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOG-AD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOG-AD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
We’re excited to bring NMOSD/MOGAD patients + caregivers from around the globe together for our 1st global support group meeting of 2023! These meetings are a safe space led by the community for the community. No judgment; only love & support. (This meeting will be conducted in English) The Human Collective Project (HCP) is TSF’s […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
There are a number of different autoimmune disorders with similar features to Multiple Sclerosis (MS), such as neuromyelitis optica spectrum disorder (NMOSD) and myelin oligodendrocyte glycoprotein antibody disorder (MOGAD). These diseases share striking similarities that ultimately affect the way in which our communities understand and manage the diagnosis. Hence, it is of utmost importance for […]
