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The Sumaira Foundation
in Blog Posts, News & Announcements
WASHINGTON, May 26, 2022—The PAN Foundation and The Sumaira Foundation (TSF) today announced they are launching a new partnership to help people living with neuromyelitis optica spectrum disorder (NMOSD), providing up to $9,600 per year in financial assistance and support services for patients and their caregivers or loved ones. Neuromyelitis optica spectrum disorder (NMOSD), also […]
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Posted by:
The Sumaira Foundation
in News & Announcements
February 10, 2022 – The Sumaira Foundation is pleased to welcome Dr. Joachim Havla of LMU Klinikum (Ludwig Maximilian University of Munich) as the first neurologist from Germany to join TSF’s medical advisory board. Dr. Joachim Havla Dr. Joachim Havla is a neurologist and senior physician at the Institute of Clinical Neuroimmunology at the LMU […]
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The Sumaira Foundation
in NMO, Patient, Voices of NMO
December of 2020 started perfectly. I recently accepted my first job offer after completing my undergraduate degree and anticipated my start date in the new year… In the second week of the month, I fell ill to what I thought was the stomach flu. I was soon rushed to the hospital after extreme nausea refused […]
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Posted by:
The Sumaira Foundation
in NMO, Patient, Voices of NMO
My name is Hali and I am a 19 year old Scottish Law student living with NMOSD. — It all began in August 2021 when I developed a rash on the left side of my neck. It caused extreme nerve pain in the brain when touched the area and would trigger shaking spasms. I then […]
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Posted by:
The Sumaira Foundation
in News & Announcements
January 21, 2022 – The Sumaira Foundation is pleased to welcome Pr. Jacqueline Palace and Pr. Sarosh Irani from University of Oxford University to its Medical Advisory Board Jacqueline Palace, BM (Hons) FRCP DM Jacqueline Palace is a consultant neurologist in Oxford and Professor in the Nuffield Department of Clinical Neurosciences, Oxford University. She runs […]
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Posted by:
The Sumaira Foundation
in Events
You are invited to attend TSF’s old Hollywood-themed 5th NMO Awareness Gala Saturday, March 26, 2022 at 7 PM Mandarin Oriental, Boston We’ve set an ambitious goal to raise $250,000 to fund innovative, groundbreaking NMOSD/MOG-AD research through TSF’s SPARK & Unicorn Grants. Click here to view the research we’ve been able to fund thanks to […]
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Posted by:
The Sumaira Foundation
in NMO, Patient, Voices of NMO
My name is Christy and I’ve been fighting this disease without knowing what I was up against since before 2008… I started calling this thing my “venom” because it reminded me of a venomous character that took over my entire being without letting go. My venom’s name is NMOSD (neuromyelitis optica spectrum disorder). It relentlessly […]
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Posted by:
The Sumaira Foundation
in News & Announcements
December 1, 2021 — The Sumaira Foundation is proud to announce the grant recipients of TSF’s 2021 SPARK and Unicorn grants. Congratulations to our 5 recipients who each received $25,000 to initiate their research projects! HLA Association in Pediatric MOG-AD, NMOSD, and ADEM 2021 Unicorn Grant recipient Nusrat Ahsan, MD | Children’s Hospital of Los […]
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Posted by:
The Sumaira Foundation
in News & Announcements
November 22, 2021 – The Sumaira Foundation is pleased to welcome Professor Romain Marignier as the 1st international NMO specialist to join TSF’s medical advisory board. Romain Marignier, MD Pr. Romain Marignier is a neurologist (MD), professor at the Neurological Hospital of Lyon, France. His areas of expertise include neuro-inflammatory disorders of the central nervous […]
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Posted by:
The Sumaira Foundation
in News & Announcements
February 16, 2021 – The Sumaira Foundation for NMO (TSF) is pleased to announce the Light the Way Forward Grant made possible by a research grant from Viela Bio. Viela Bio is establishing the Light the Way Forward Grant to fuel research aimed to improve understanding of neuromyelitis optica spectrum disorder (NMOSD) and positively impact […]
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