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Spanish Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
I was diagnosed with Neuromyelitis Optica Spectrum Disorder (NMOSD) in November 2013. My symptoms started June of that year with my toes going numb, shortly after returning from a cruise I took for my 30th birthday. Unlike most others, I was actually looking forward to turning the big 3-0! As the month went on, the […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
One morning in October of 2013, I remember feeling a sharp pain in my right eye when I would try to read and the letters were very blurry. It was in the midst of a very busy semester of in college, so I considered it to be a symptom of long hours of studying, hundreds […]
Read MorePosted by: The Sumaira Foundation in Events
We are hosting our first black-tie event, NMO Awareness Gala at the beautiful Liberty Hotel Ballroom. Please join us for an evening filled with delicious food and beverages, DJ and dancing, photos, and a swag bag filled with amazing goodies all while raising awareness for Neuromyelitis Optica. Two raffle tickets will be given to every attendee upon […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
Please help us give a warm welcome to Gabriela Romanow, Parent Advocate, who will serve as our Community Outreach Manager & Liaison to Neuromyelitis Optica [NMO] organizations worldwide. Gabriela first became invested in Neuromyelitis Optica when her son was diagnosed in 2014. Since then, she has volunteered her time and effort towards raising significant funds […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMO, Voices of NMO
In early November 2000, Nick came down with viral symptoms. He was just done eating dinner when he vomited across the kitchen – I was shocked. Up to this point he was a healthy 23 month old who was active, talking and above average in his skills and was never sick a day in his […]
Read MorePosted by: The Sumaira Foundation in Events
On August 20, 2015, we were delighted to host our 2nd fundraiser on the 22nd floor of the iconic Empire State Building at the Linkedin headquarters in New York City. With over 50 guests in attendance, dressed in their best, this event as a GREAT SUCCESS! We were able to raise $2,650 that will be […]
Read MorePosted by: The Sumaira Foundation in Media & Press
When 25-year-old Sumaira Ahmed got a call from her doctor’s officelast May, she was shattered by the troubling news. “You don’t have cancer,” said a voice from the other end. In normal circumstances, this would be considered good news—but not for this Boston resident. “I was lying on the floor, broken, crying over why I […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMO, Voices of NMO
Neuromyelitis Optica – a rare disease that appeared out of the blue and had a mission to suck the life out of my dear sister. At first we thought that it was Multiple Sclerosis, at least that’s what the doctors said. NMO was and still is a new phenomenon. This is why many, including my […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
The Sumaira Foundation is now on AmazonSmile! You shop and Amazon gives. Amazon donates 0.5% of eligible purchases to a charitable organization you choose to support. Shop the same products and prices as you normally would through smile.amazon.com and choose The Sumaira Foundation as your default organization. Thank you for your continued support!
Read MorePosted by: The Sumaira Foundation in Events
We hosted our 1st fundraiser on Sunday, February 8th 2015 at the beautiful ROW34 in Fort Point, Boston. It was a major success with 50 guests in attendance despite the inclement weather. I’m so excited to announce that we were able to raise $2,345 that will be put towards developing programs for patient support and […]
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