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Posted by: The Sumaira Foundation in News & Announcements
On Saturday, June 15, 2024, we hosted our Cleveland Patient Day for NMOSD & MOGAD in collaboration with Dr. Amy Kunchok, Dr. Mary Rensel and Dr. Justin Abbatemarco at Cleveland […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
On January 30, 2023, I was diagnosed with relapsing-remitting multiple sclerosis following the onset of nearly complete vision loss in my left eye. That day marked a profound turning point […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient, Voices of NMO
Je m’appelle Nelly, j’ai 44 ans et je vis dans un joli village dans l’Oise et j’ai la MOGAD. Sans le savoir cette maladie m’avait déjà fait un petit clin […]
Read MorePosted by: The Sumaira Foundation in Caregiver, MOG, Voices of NMO
Ciao a tutti, mi presento, sono la mamma di Auri. Mi piace presentarmi così, perché questa è la sua storia, la storia di una bambina bella e forte che nel […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
With a vulnerable yet advocational heart, I would love to re-introduce myself to the NMO community! My name is Alyson Tignor (née Pugh) and I am so much more than […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO
It all began in early 2020 when Kayla noticed a tingling sensation in her right leg. She didn’t think too much about it and figured it would go away. Thinking […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
January 22, 2024 — The Sumaira Foundation is delighted to announce a new partnership with the Caminemos Foundation, a Mexican non-profit patient advocacy organization working in the area of demyelinating […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Hello. Hola. My name is Marie and I am proud to be the Welcome Manager for The Sumaira Foundation. I was diagnosed with NMO in 2007 when I was only […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
Il 18 novembre 2023 TSF Italia ha ospitato la sua prima giornata internazionale dedicata ai pazienti in Italia, a Verona. Si sono uniti a noi 50 pazienti, operatori sanitari e […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Professional, Voices of NMO
Three years ago, right in the middle of my medical internship, I was diagnosed with Seronegative NMOSD. I took a leave of absence, not knowing if I could go back […]
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