Posted by: The Sumaira Foundation in NMO, Uncategorized, Voices of NMO
My NMO journey started just a few weeks after having my first baby girl in August 2020. Being a first time mom, I had no idea what postpartum should look like therefore, some of my symptoms in the moment were overlooked and hard to tell what was actually happening! About 5 weeks after having my […]
Read MorePosted by: The Sumaira Foundation in MOG, Voices of NMO
It was the Friday before Halloween in 2018. Anthy was on her way home from work when she called her husband to see if she needed to pick up anything on the way home. She heard him crying, telling her that his mother, in Greece, had just been diagnosed with cancer. Instantly, she felt a […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, Voices of NMO
It was December 2019. I struggled almost every day with tension headaches (eyes and nose). My primary care doctor suspected I had migraines and prescribed me with migraine medication. I don’t like taking medication (never have) and stopped taking the pills after two days. I chose to fight the headaches… On Christmas Eve, I noticed […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO
I was 33 years old in 1993, when I experienced a sudden attack of optic neuritis, an inflammation that damages the optic nerve causing vision loss. A small black dot, obstructing the vision in my left eye turned into complete blindness in that eye in a matter of days. While admitted to Upstate University Hospital […]
Read MorePosted by: The Sumaira Foundation in Events
Thank you to our fabulous guests, featured speakers Drs. Dean Cestari and Marcelo Matiello, Chef Bouley + the Bouley Culinary Team for helping us raise NMO awareness us at The Chef + The Doctor on Wednesday, January 17th in New York City! Click here to view the full gallery of photos by the incredibly talented […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
In October 2015, as I was traveling to Oklahoma to visit my sister, I developed a deep gray-teardrop-shaped spot in my right eye which increased after I arrived. I mentioned this to my sister as it was odd I could see around this shape. There was a little soreness and my eye was slightly itchy. […]
Read MorePosted by: The Sumaira Foundation in Events
Thank you to everyone who made the 2nd New England NMO Patient Day a spectacular day! Special thanks to: Brigham and Women’s Hospital Massachusetts General Hospital The Guthy-Jackson Charitable Foundation Foundation for Neurologic Diseases Dr. Brian Weinshenker (Mayo Clinic) Lindsay Lucas + company Osakpolo Igiede View album
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, Voices of NMO
Ann and her husband were at the seaside, collecting seaweed to use in a kitchen garden they were digging. Ann noticed a tightness in and around her chest, but assumed the hard work was causing the strange sensation. The tightness, like a band around her body, lasted for a few days. Ann went to the […]
Read MorePosted by: The Sumaira Foundation in Events
Register today! www.tinyurl.com/NMOdayNE
Read MorePosted by: The Sumaira Foundation in Events
“The Chef + The Doctor” at Bouley Botanical (Tribeca, NYC) Wednesday, January 17, 2018 at 6:30PM Nutritive Cuisine, Eyesight, and the Central Nervous System: An Evening with Dr. Dean Cestari, Dr. Marcelo Matiello & This experience, curated to help generate awareness for NMOSD and The Sumaira Foundation for NMO, will feature a presentation by two world-renowned experts– Dr. […]
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