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Posted by:
The Sumaira Foundation
in NMO, Patient, TM, Voices of NMO
I was 33 years old in 1993, when I experienced a sudden attack of optic neuritis, an inflammation that damages the optic nerve causing vision loss. A small black dot, […]
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Posted by:
The Sumaira Foundation
in MOG, ON, Voices of NMO
It was the late 1990’s. I was in my 30’s had constant pain down my left arm, and even though I couldn’t tie the symptoms down to any single event, […]
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Posted by:
The Sumaira Foundation
in News & Announcements
December 16, 2019 — The Sumaira Foundation for NMO (TSF) and The Elliot Lewis Center are pleased to announce their partnership as of December 2019. The organizations have a shared […]
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Posted by:
The Sumaira Foundation
in News & Announcements
December 5, 2019 – The Sumaira Foundation for NMO is pleased to welcome Joshua Katz, MD to its medical advisory board. Joshua Katz, MD Dr. Joshua Katz is the Co-Director […]
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Posted by:
The Sumaira Foundation
in NMO, ON, Patient, TM, Voices of NMO
I have a rare, chronic neurological disease that affects my central nervous system. It’s caused me to become temporarily half-blind and feel throbbing pain everywhere… I was diagnosed with Neuromyelitis […]
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Posted by:
The Sumaira Foundation
in NMO, ON, Patient, Voices of NMO
Life before NMO – I was an active mom, worked as a home health nurse case manager and an avid marathon/half marathon runner… Before work, I would wake up at […]
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Posted by:
The Sumaira Foundation
in Caregiver, NMO, ON, Voices of NMO
My name is Veronica and this is my NMO story. I am not a patient but a mother/caregiver of an NMO patient. I have always been in a way, made […]
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Posted by:
The Sumaira Foundation
in NMO, Patient, Voices of NMO
My name is Sherry. My experience with my disease is a little different and backwards… I was taking care of my father who had MS for many years and experienced […]
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Posted by:
The Sumaira Foundation
in NMO, Patient, Voices of NMO
Back in 2013 and 2014, I completed two 100km walks to raise money for Oxfam – something I am so proud to have done! BUT in 2016, when I tried […]
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Posted by:
The Sumaira Foundation
in NMO, ON, Patient, Voices of NMO
In February 2019, I received an NMOSD diagnosis after nearly 11 years of being treated for multiple sclerosis… I think when you are diagnosed with a chronic disease, knowing who […]
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