Posted by: The Sumaira Foundation in MOG, Patient, Voices of NMO
It all began with a tremor. It was September 2018, and I was off on maternity leave after having my second daughter earlier that year. As nice as that should have been, I was probably at one of the lowest points in my life. I’d been diagnosed with post-natal depression a few months earlier. In […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
February 16, 2021 – The Sumaira Foundation for NMO (TSF) is pleased to announce the Light the Way Forward Grant made possible by a research grant from Viela Bio. Viela Bio is establishing the Light the Way Forward Grant to fuel research aimed to improve understanding of neuromyelitis optica spectrum disorder (NMOSD) and positively impact […]
Read MorePosted by: The Sumaira Foundation in MOG, Voices of NMO
It was the Friday before Halloween in 2018. Anthy was on her way home from work when she called her husband to see if she needed to pick up anything on the way home. She heard him crying, telling her that his mother, in Greece, had just been diagnosed with cancer. Instantly, she felt a […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
November 9, 2020 – We are proud to announce the grant recipients of TSF’s 2020 research grants. Congratulations to our recipients who received $25,000 to initiate their projects! Diagnostics in NMOSD Farrah Mateen, MD, PhD | Massachusetts General Hospital (Boston, MA) Aim: To pilot a novel point-of-care dry blood spot diagnostic test for patients with […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
August 18, 2020 – The Sumaira Foundation is pleased to present NMOSD/MOG-AD Support Groups & Pages Our team hopes that this document will serve as a valuable resource to our small but mighty community! A clickable PDF version is available: NMOSD/MOG-AD Support Groups & Pages This list has been compiled by Lelainia Lloyd, TSF Ambassador […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
July 9, 2020 — In spring 2020, The MOG Project partnered with the SRNA and The Sumaira Foundation to understand treatment practices among MOG-AD patients. The goal of the survey was to learn from the MOG-AD community experience and share results with physicians and each other. 267 MOG-AD patients and their caregivers completed a survey […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
June 22, 2020 — The Sumaira Foundation for NMO is pleased to present its newest ambassadors to the TSF family. The ambassador team consists of 20 ambassadors who represent 15 states and 3 countries. The TSF ambassadors volunteer their time to lead the organization’s mission in their territories to raise awareness for NMO / MOG, […]
Read MorePosted by: The Sumaira Foundation in Caregiver, MOG, ON, Voices of NMO
Virginia was only 10 when, while checking the mail one day in April, she noticed a grayness in her vision, “like leaves creeping up from the bottom of my eye.” The strange phenomenon went away in a few minutes. Her mother, Kimberlie, attributed the problem to Virginia’s allergies. But when the vision problem returned, they […]
Read MorePosted by: The Sumaira Foundation in MOG, ON, Voices of NMO
It was the late 1990’s. I was in my 30’s had constant pain down my left arm, and even though I couldn’t tie the symptoms down to any single event, my orthopedic surgeon had me on the surgery schedule assuming I needed a spinal fusion to fix a slipped disc. Then my MRI results came […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
December 16, 2019 — The Sumaira Foundation for NMO (TSF) and The Elliot Lewis Center are pleased to announce their partnership as of December 2019. The organizations have a shared mission to enhance care and treatment of patients with neuromyelitis optica. The Sumaira Foundation for NMO TSF is a 501(c)(3) organization founded by an NMO […]
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