Posted by: The Sumaira Foundation in NMO, Voices of NMO
My name is Allison and I am a married, busy mom of three children (17, 12 & 12 years old). My NMO journey started approximately seven years ago, when I was dealing with my husband’sunexpected open heart surgery and the passing of my mother… My body just wasn’t right; everything was off and out of […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
January 8, 2021 — Since 2019, our small but mighty and growing community has seen three FDA-approved therapies. At TSF, we’re huge advocates for shared-decision making between patients and their physicians, especially when it comes to deciding what treatment(s) to opt for. The Sumaira Foundation for NMO is pleased to announce its launch the first-of-its-kind […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Today this is where I am – right here and right now. God has a plan, yesterday is gone and tomorrow may never be – It’s up to me as to how I make the best of it. Much, much more of the story of “NMO & Me” to unfold, as Dr. Will Meador, one […]
Read MorePosted by: The Sumaira Foundation in MOG, ON, Voices of NMO
It was the late 1990’s. I was in my 30’s had constant pain down my left arm, and even though I couldn’t tie the symptoms down to any single event, my orthopedic surgeon had me on the surgery schedule assuming I needed a spinal fusion to fix a slipped disc. Then my MRI results came […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
December 16, 2019 — The Sumaira Foundation for NMO (TSF) and The Elliot Lewis Center are pleased to announce their partnership as of December 2019. The organizations have a shared mission to enhance care and treatment of patients with neuromyelitis optica. The Sumaira Foundation for NMO TSF is a 501(c)(3) organization founded by an NMO […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Imagine this: You’re driving on a highway, and suddenly, your hands stop working completely. You can’t grip the wheel. Imagine the terror and the confusion… And then imagine, that, thank goodness, your husband is in the car with you and takes over driving before you get into an accident. You assume something crazy happened and […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
I was a 26 year old working in the Pentagon in the Navy Executive Dining Facility. I was Active Duty Navy for almost 8 years… On October 18, 2017, I had a colonoscopy because I was losing weight, bowels had blood and mucus coming out. After that, I start having a tingling in my thighs […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
I’m Ilene, the youngest of seven children. I come from a family of school teachers and musicians. I love board games, musicals, plays, happy movies, skeet ball, Tower of Terror and having other people cook for me. My dream life was to be a pianist, a teacher, get married, travel, have children, be the fun […]
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