Posted by: The Sumaira Foundation in Events, News & Announcements
You’re invited to attend an exclusive summer event to Celebrate 8 Years of TSF Thursday, July 28 @ at 6:30 PM The Envoy Hotel Lookout Rooftop & Bar (70 Sleeper St, Boston, MA 02210, overlooking Boston’s financial district) With your support, over the past 8 years the foundation has: Awarded $500,000+ to NMO/MOG-AD research Shared 130 Voices of NMO/MOG […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My name is Pauline Richardson nee Grant. I grew up on a farm in Jamaica. My mom, being a cheerful giver, would invite people over all the time, always making sure they were well fed. My parents instilled in us strong values, the importance of family, faith, and community. My parents’ caring and compassionate attitude […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
February 10, 2022 – The Sumaira Foundation is pleased to welcome Dr. Joachim Havla of LMU Klinikum (Ludwig Maximilian University of Munich) as the first neurologist from Germany to join TSF’s medical advisory board. Dr. Joachim Havla Dr. Joachim Havla is a neurologist and senior physician at the Institute of Clinical Neuroimmunology at the LMU […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
December of 2020 started perfectly. I recently accepted my first job offer after completing my undergraduate degree and anticipated my start date in the new year… In the second week of the month, I fell ill to what I thought was the stomach flu. I was soon rushed to the hospital after extreme nausea refused […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My name is Hali and I am a 19 year old Scottish Law student living with NMOSD. — It all began in August 2021 when I developed a rash on the left side of my neck. It caused extreme nerve pain in the brain when touched the area and would trigger shaking spasms. I then […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Born and raised in Tokyo, Mamiko Sakaida always loved singing and wanted to become an opera singer. In pursuit of her making her dreams come true, she studied opera in Bologna, Italy, where she trained with the best of the best in her industry. Mamiko’s life suddenly and drastically changed in 2016 when she became paralyzed from […]
Read MorePosted by: The Sumaira Foundation in Events
You are invited to attend TSF’s old Hollywood-themed 5th NMO Awareness Gala Saturday, March 26, 2022 at 7 PM Mandarin Oriental, Boston We’ve set an ambitious goal to raise $250,000 to fund innovative, groundbreaking NMOSD/MOG-AD research through TSF’s SPARK & Unicorn Grants. Click here to view the research we’ve been able to fund thanks to […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My name is Christy and I’ve been fighting this disease without knowing what I was up against since before 2008… I started calling this thing my “venom” because it reminded me of a venomous character that took over my entire being without letting go. My venom’s name is NMOSD (neuromyelitis optica spectrum disorder). It relentlessly […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My name is Shanice. I was born and raised in Jamaica and now reside in Toronto in Canada. I am a second-year medical student aspiring to be a physician in obstetrics/gynecology. I have always considered myself to be a very healthy individual with a very pepping personality. When I started medical school in 2017 in […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
September 21, 2021 — The Sumaira Foundation for NMO is pleased to welcome Stephanie Hamzo to its board of directors. Stephanie Hamzo With a true passion for patients, and dedication to connecting patients/caregivers in need of resources and support, Stephanie Hamzo has built her career in rare and ultra-rare disease communities. Throughout many roles she […]
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