The Human Collective Project (HCP) is TSF’s peer support program for individuals living with or impacted by rare neuroimmune and related conditions, including: - Autoimmune encephalitis (AE) - Chronic inflammatory demyelinating polyneuropathy (CIDP) - CNS vasculitis - IgG4-related disease (IgG4-RD) - Myasthenia gravis (MG) - Multifocal motor neuropathy (MMN) - Myelin oligodendrocyte glycoprotein antibody-associated disease […]
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe, inclusive space for family members, partners, siblings, children, and loved ones to connect, share, and be heard. Led […]
Steroids and plasma exchange (PLEX) can play important roles in treating flares and relapses in many rare neuroimmune conditions. But how do these treatments work, when are they used, and what should patients know about their potential side effects and long-term considerations? Join Dr. John Chen from Mayo Clinic in Rochester, Minnesota, for a patient-friendly […]
À tous les patients et aidants touchés par des maladies auto-immunes et auto-inflammatoires rares en France et en Belgique ! Vous ou l'un de vos proches est touché par : la NMOSD, une maladie aux IgG4, la Myasthénie, la maladie de Basedow ou la MOGAD ? Vous êtes les bienvenus à notre événement le samedi 21 novembre. […]
The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved ones ride the rollercoaster of feelings throughout their daily lives, from the moment of symptom onset. Often, getting the proper diagnosis is a journey of […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
We're coming to Los Angeles! TSF is inviting patients and caregivers impacted by rare neuroinflammatory & related disorders from California & the west coast! Are you or your loved one impacted by: CIDP*, MG*, MMN*, MOGAD*, neurosarcoidosis, or NMOSD*? You're invited to our event on Saturday, December 5th. Join us for a day of education, community […]
TSF'S Human Collective Project (HCP) | North America The Human Collective Project (HCP) is TSF’s peer support program for individuals living with or impacted by rare neuroimmune and related conditions, including: - Autoimmune encephalitis (AE) - Chronic inflammatory demyelinating polyneuropathy (CIDP) - CNS vasculitis - IgG4-related disease (IgG4-RD) - Myasthenia gravis (MG) - Multifocal motor […]
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe, inclusive space for family members, partners, siblings, children, and loved ones to connect, share, and be heard. Led […]