The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved ones ride the rollercoaster of feelings throughout their daily lives, from the moment of symptom onset. Often, getting the proper diagnosis is a journey of […]
Calling Canadians impacted by NMOSD: you're invited for a live patient education webinar about how to navigate life with neuromyelitis optica spectrum disorder in Canada. Join us on Wednesday, November 5th at 7 PM EST for a live presentation and discussion with Dr. Dalia Rotstein, neurologist at The University of Toronto and a globally-recognized expert […]
We're coming to Toronto! Are you an AE*, MG*, MOGAD* or NMOSD* patient, partner, care-partner, clinician, nurse, researcher and/or advocate in Canada? You're invited to our event on Saturday, November 8th. Join us for a day of education, community, and fun to: Meet local patients, partners, care-partners and clinicians Ask experts questions in real time […]
Εσείς ή κάποιος που αγαπάτε επηρεάζεστε από το MOGAD; Σας προσκαλούμε να συμμετάσχετε στο επερχόμενο πρόγραμμά μας αφιερωμένο στην MOGAD τη Δευτέρα 10 Νοεμβρίου στις 6 μ.μ. EET. Θα συμμετάσχουν ο Καθηγητής Νικόλας Γρηγοριάδης και η Δρ. Έλμα Ευαγγελοπούλου, οι οποίοι θα συζητήσουν τα συμπτώματα, τις θεραπείες και τις κλινικές δοκιμές της MOGAD. Οι συμμετέχοντες […]
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe, inclusive space for family members, partners, siblings, children, and loved ones to connect, share, and be heard. Led […]
Bent u of kent u iemand die getroffen is door MOGAD? U bent uitgenodigd voor een webinar over MOGAD en klinische studies op 18 november. We zullen worden vergezeld door prof. Barbara Willekens en prof. Guy Laurys, die een overzicht geven van MOG-antilichaamziekte, klinische studies en hoe patiënten kunnen deelnemen aan MOG-gerelateerde klinische studies voor […]
TSF Italia è lieta di invitare tutti i pazienti italiani affetti da encefalite autoimmune, miastenia grave, MOGAD e NMOSD, i loro caregiver e i medici interessati a queste patologie a partecipare a questa giornata di formazione, convivialità e divertimento. In collaborazione con il Dott. Raffaele Iorio del Policlinico Universitario Agostino Gemelli e in partnership con […]
The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved ones ride the rollercoaster of feelings throughout their daily lives, from the moment of symptom onset. Often, getting the proper diagnosis is a journey of […]
TSF France, en partenariat avec le MIRCEM, présente le 3ème week-end Patients et Aidants de la NMOSD et de la MOGAD les 29 et 30 novembre à Lyon ! L'évènement, complétement gratuit, aura lieu au Mama Shelter de Lyon, rue Domer, les 29 et 30 novembre 2025. Nous sommes ravis d'être accompagnés par les experts […]
The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved ones ride the rollercoaster of feelings throughout their daily lives, from the moment of symptom onset. Often, getting the proper diagnosis is a journey of […]
