The Sumaira Foundation Canada is pleased to invite you to an important educational webinar on Thursday, December 11th at 7:30 PM EST. This session will explore the evolving treatment options […]
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| 0 events, | 0 events, | 0 events, | 1 event, The Sumaira Foundation Canada is pleased to invite you to an important educational webinar on Thursday, December 11th at 7:30 PM EST. This session will explore the evolving treatment options […] | 0 events, | 0 events, | 1 event,  The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe, inclusive space for family members, partners, siblings, children, and loved ones to connect, share, and be heard. Led […] |
| 0 events, | 2 events,  Patients living with rare conditions in the US frequently face extra complexities when seeking access to specialized treatments, off-label therapies, or less common care pathways. Prior authorizations may take longer, documentation requirements may be more intensive, and appeals may present additional hurdles. Join us on December 16th at 7 PM EST for a special webinar […]  En compañía de una psicóloga, una neurologa (ambas embajadores de TSF) y un psiquiatra, trataremos temas enfocados en salud mental. Una parte muy importante pero a veces ignorada por pacientes y cuidadores, del tratamiento integral que necesitan los pacientes de enfermedades neuroinmunes raras. | 0 events, | 0 events, | 0 events, | 0 events, | 0 events, |
| 1 event,  The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved […] | 1 event,  Siz veya sevdiğiniz biri MOG antikor hastalığından etkileniyor mu? 23 Aralık Salı günü saat 16:00'da MOGAD'a özel bir web seminerine katılmanızı rica ediyoruz. Prof. Dr. Murat Kürtüncü, Prof. Dr. Murat Terzi ve Prof. Dr. Emine Rabia Koç, MOG antikor hastalığı, klinik çalışmalar ve hastaların gelecekteki tedavi seçenekleri için MOG ile ilgili klinik çalışmalara nasıl katılabilecekleri […] | 0 events, | 0 events, | 0 events, | 0 events, | 0 events, |
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