TSF’s Honolulu Patient Day for Rare Neuroinflammatory Disorders
Are you or your loved one impacted by MG*, MOGAD* or NMOSD*? TSF is inviting patients and caregivers impacted by rare neuroinflammatory disorders from all over Hawaii to join us […]
Are you or your loved one impacted by MG*, MOGAD* or NMOSD*? TSF is inviting patients and caregivers impacted by rare neuroinflammatory disorders from all over Hawaii to join us […]
The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved […]
Un espacio en español para que pacientes de enfermedades neuroinmunes raras como NMOSD, MOGAD, etc expresen sus emociones.
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 […]
In honor of Rare Disease Day 2026, join us for a special Meet the Author fireside chat on February 26th at 7:00 PM EST. We’re honored to welcome Jayne Mattingly, […]
Wir kommen nach Berlin! Sind Sie oder Ihre Angehörigen von einer der folgenden Erkrankungen betroffen: Autoimmunenzephalitis, Myasthenia gravis, MOGAD oder Neuromyelitis-optica-Spektrum-Erkrankung? Wir laden Patienten, Angehörige und medizinisches Fachpersonal aus der DACH-Region herzlich zu einer Sonderveranstaltung für Patienten und Angehörige am Samstag, den 7. März, in der Charité Berlin ein (Charité Campus Virchow-Klinikum Augustenburger Pl. 113353 […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 […]
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and […]
In soli cinque anni, la comunità NMOSD è passata da zero terapie approvate a quattro — un traguardo straordinario, soprattutto considerando che solo circa il 5% delle malattie rare dispone di una terapia approvata. Unitevi a noi il 24 marzo: saremo in compagnia del Dr. Raffaele Iorio, neuroimmunologo di Roma, che presenterà una panoramica delle […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 […]
A recent study, “Real‑World Efficacy and Safety of Neuromyelitis Optica Spectrum Disorder Disease‑Modifying Treatments,” showed that in routine practice, approved NMOSD therapies reduce relapse rates and offer better safety than older treatments, reinforcing their value for patients. (Read the article here: pmc.ncbi.nlm.nih.gov) To mark NMO Awareness Month 2026, we’ll be joined by Dr. Shamik Bhattacharyya, […]
The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved […]
