Comprendere l’anticorpo AQP4 nella NMOSD
L’AQP4 (Aquaporina-4) è una proteina presente nel cervello, nel midollo spinale e nei nervi ottici che aiuta a regolare il movimento dell’acqua dentro e fuori dalle cellule. Nella NMOSD, il […]
L’AQP4 (Aquaporina-4) è una proteina presente nel cervello, nel midollo spinale e nei nervi ottici che aiuta a regolare il movimento dell’acqua dentro e fuori dalle cellule. Nella NMOSD, il […]
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and […]
Los cuidadores de personas con condiciones neuroinmunes raras como NMOSD y MOGAD necesitan un espacio para contar sus experiencias. Este espacio para cuidadores es dirigido por un cuidador de Colombia […]
Il tuo bambino ha ricevuto una diagnosi di NMOSD o MOGAD? Ti stai chiedendo come la diagnosi potrebbe influire sul suo sviluppo cognitivo? Unisciti a noi martedì 29 aprile alle […]
¿Tú o un ser querido viven con NMOSD en Latinoamérica? Únete al equipo de LatAm de The Sumaira Foundation para un webinar especial dedicado a explorar los desafíos únicos que […]
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe, inclusive space for family members, partners, siblings, children, and loved ones to connect, share, and be heard. Led […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
Living with chronic pain can feel overwhelming, but you don’t have to face it alone. You're invited to a webinar focused on navigating chronic pain with clarity, support, and hope. On Monday, May 18th at 3:30 PM EST, we’ll be joined by Dr. Anastasia Vishnevetsky, neuroimmunologist at Mass General Brigham/Harvard Medical School, who will share […]
The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved ones ride the rollercoaster of feelings throughout their daily lives, from the moment of symptom onset. Often, getting the proper diagnosis is a journey of […]
Not sure your neurologist needs to hear from you? Or what to say when you reach out? You’re not alone. Join us on Thursday, May 28 at 6 PM PT […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 […]
TSF is inviting patients and caregivers impacted by rare neuroinflammatory & related disorders from Montreal and the province of Quebec! We're coming to Montreal! Are you or your loved one impacted by: CIDP*, IgG4-RD*, MG*, MOGAD* or NMOSD*? You're invited to our event on Saturday, June 13th. Join us for a day of education, community […]
