
Navigating NMOSD in Canada
Calling Canadians impacted by NMOSD: you're invited for a live patient education webinar about how to navigate life with neuromyelitis optica spectrum disorder in Canada. Join us on Wednesday, November […]
Calling Canadians impacted by NMOSD: you're invited for a live patient education webinar about how to navigate life with neuromyelitis optica spectrum disorder in Canada. Join us on Wednesday, November […]
The Sumaira Foundation Canada is pleased to invite you to an important educational webinar on Thursday, December 11th at 7:30 PM EST. This session will explore the evolving treatment options […]
Patients living with rare conditions in the US frequently face extra complexities when seeking access to specialized treatments, off-label therapies, or less common care pathways. Prior authorizations may take longer, […]
Unisciti a noi il 27 gennaio per un webinar speciale dedicato alla terapia con cannabinoidi come opzione terapeutica valida e sicura per le malattie croniche. Sarà con noi Elisabetta Biavati, […]
Con motivo del Día Mundial de la Encefalitis 2026, nos complace contar con la participación de la Dra. Nicole Somerville Briones, quien ofrecerá una visión general de la encefalitis autoinmune […]
In soli cinque anni, la comunità NMOSD è passata da zero terapie approvate a quattro — un traguardo straordinario, soprattutto considerando che solo circa il 5% delle malattie rare dispone […]
A recent study, “Real‑World Efficacy and Safety of Neuromyelitis Optica Spectrum Disorder Disease‑Modifying Treatments,” showed that in routine practice, approved NMOSD therapies reduce relapse rates and offer better safety than older treatments, reinforcing their value for patients. (Read the article here: https://pubmed.ncbi.nlm.nih.gov/41494145/) To mark NMO Awareness Month 2026, we’ll be joined by Dr. Shamik Bhattacharyya, […]
L’AQP4 (Aquaporina-4) è una proteina presente nel cervello, nel midollo spinale e nei nervi ottici che aiuta a regolare il movimento dell’acqua dentro e fuori dalle cellule. Nella NMOSD, il sistema immunitario attacca per errore l’AQP4. Questo attacco può causare infiammazione nel midollo spinale e nei nervi ottici, portando a sintomi come alterazioni della vista, […]
Il tuo bambino ha ricevuto una diagnosi di NMOSD o MOGAD? Ti stai chiedendo come la diagnosi potrebbe influire sul suo sviluppo cognitivo? Unisciti a noi martedì 29 aprile alle ore 20:00 CET per un webinar speciale con il Dott. Alberto Cossu, neuropsichiatra infantile presso l'Azienda Ospedaliera Universitaria Integrata di Verona, che approfondirà il rapporto […]
¿Tú o un ser querido viven con NMOSD en Latinoamérica? Únete al equipo de LatAm de The Sumaira Foundation para un webinar especial dedicado a explorar los desafíos únicos que enfrentan los pacientes con NMOSD en Argentina, Colombia y México. Este webinar en español reunirá a destacados neurólogos de los tres países para analizar la […]
Living with chronic pain can feel overwhelming, but you don’t have to face it alone. You're invited to a webinar focused on navigating chronic pain with clarity, support, and hope. […]
Not sure your neurologist needs to hear from you? Or what to say when you reach out? You’re not alone. Join us on Thursday, May 28 at 6 PM PT / 9 PM ET for a practical, patient-friendly webinar with Dr. Stacey Clardy, a leading neurologist, who will walk through when it’s important to contact […]
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