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Posted by: The Sumaira Foundation in NMOSD, Patient, Voices of TSF
Recently, Ria’s mother’s blood pressure climbed dangerously high. Her father is scheduled for a triple bypass later this week. It’s been an unusual few months for a woman who has […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Transverse Myelitis (TM), Voices of TSF
I was diagnosed with Neuromyelitis Optica in June of 2012 after two hospitalizations totaling 5 months, during which I lost all my strength, ability to move and all feeling from […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of TSF
The Diagnosis My NMO journey started after my 29th birthday in January 2016. I had a headache that would not go away. It was unlike anything I had experienced before. […]
Read MorePosted by: The Sumaira Foundation in NMOSD, ON, Patient, Transverse Myelitis (TM), Voices of TSF
Meet Dionne, a vibrant 46-year old, former nurse, mother of 2 from New Orleans, Louisiana who has been living with NMO since 2009. Click below to watch Dionne share her […]
Read MorePosted by: The Sumaira Foundation in NMOSD, ON, Patient, Transverse Myelitis (TM), Voices of TSF
Meet Megan, a 16 year old NMO patient who and YouTube sensation (@PerfectlyKnitBeauty) who has been coping with her chronic illness through the use of makeup. We laud her courage, […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Transverse Myelitis (TM), Voices of TSF
She thought she had a bad sunburn… Lillian had gone camping with her daughter and her Girl Scout troop in September of 2015. When she returned home, her shoulders and […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of TSF
I was diagnosed with NMO on March 10, 2015… An MRI that was done while I was receiving inpatient care for sudden paralysis of my lower limbs showed a spinal […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMOSD, Voices of TSF
My name is Jamie and I am Adam’s partner of 17 years. This is Adam’s NMO story from my perspective… Everything was perfect in our lives; Adam had a good […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of TSF
With respect to the patient’s desire to remain anonymous, we will refer to him as Matt. It started along with a very bad cold in late 2011. Eye pain and […]
Read MorePosted by: The Sumaira Foundation in MOGAD, NMOSD, Professional, Voices of TSF
I was an on-call intern late one night at the Johns Hopkins Hospital when I met a young woman who presented with weakness and pain in her legs. This was […]
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