

In honor of Rare Disease Day 2026, join us for a special Meet the Author fireside chat on February 26th at 7:00 PM EST.
We’re honored to welcome Jayne Mattingly, author of “This is Body Grief”, in conversation with Taylor Ann Macey, NMOSD patient and TSF Ambassador. Their discussion will explore chronic illness, advocacy and Jayne’s powerful book – an intimate, lyrical reflection on living in a body shaped by illness, grief, resilience and care.
A thoughtful, honest conversation you won’t want to miss. Register here: https://us02web.zoom.us/webinar/register/WN_DJvY5tYkTK2TikJiGU2Kag
To order Jayne’s book, visit https://www.amazon.com/This-Body-Grief-Making-Living/dp/0593656792