Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My name is Pauline Richardson nee Grant. I grew up on a farm in Jamaica. My mom, being a cheerful giver, would invite people over all the time, always making sure they were well fed. My parents instilled in us strong values, the importance of family, faith, and community. My parents’ caring and compassionate attitude […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My name is Shekita Green and I have neuromyelitis optica. I am the mother of two teenagers, the wife of an Army vet and an entrepreneur. In my “past life”, I was a person who was heavily obsessed with working. I don’t know what it was, but work gave me life. No one should have […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMO, Voices of NMO
Jarrie grew up on a farm and declares himself a simple man. I think otherwise. I think Jarrie is a man for whom love is simply enough. Jarrie married his high school sweetheart, Donna, on Valentine’s Day in 1975. She died on New Year’s Day in 2021. Donna’s health began to deteriorate when she contracted […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
Tiffany was a military brat with both of her parents serving in the Navy, so joining up herself seemed the obvious choice for her. She enlisted in 2006 and met her husband on board a Navy ship in 2009. It was where she was meant to be. Tiffany was stationed in Suffolk, Virginia in January […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO
On the evening of Sunday, 17th January 2010, my mother was putting up a fight with my brothers and I to go to bed while we were chasing each other through the house. We had school the next day; I was 12 years old at the time. At 4am the next morning, I woke up […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, Voices of NMO
My name is AnneMarie and my journey with NMO began in 2002 when I was just 16 years old… One April morning, I woke up with a stabbing pain in my lumbar spine which was getting progressively worse. My mom rushed me to the local emergency room where they had taken x-rays and done bloodwork. […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO
My biggest fear in life was that I would have some incurable sickness or disease. Not heights, nor spiders, nor public speaking. It was getting sick. Both of my parents had a myriad of physical and mental illnesses throughout my whole life, which seemed to be getting worse as the years went on. My mother […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, TM, Voices of NMO
My name is Kellin. I am a 28-year-old South African NMO patient and this is my story… Late in 2015, my father suddenly passed away. It was a shock to my system and I was not prepared for it. In the months/years to follow, I experienced weird symptoms – which I now know were due […]
Read MorePosted by: The Sumaira Foundation in NMO, Professional, TM, Voices of NMO
Maureen is a nurse. She worked in neurocritical care at Johns Hopkins Hospital for many years before she had ever heard of NMO. But in 2007, shortly after Dr. Benjamin Greenberg joined the faculty at Johns Hopkins, he recruited her to work with him in neuroimmunology. It was there that she first came into contact […]
Read MorePosted by: The Sumaira Foundation in Events
Although we would prefer to get together in person, we look forward to coming together virtually in October to commemorate six years of TSF. Please join us on Saturday, October 24 at 12 PM EST. as our hosts Gaetano Morello and Lauren Michaels facilitate a thoughtful program featuring commentary from TSF’s founder Sumaira and medical members […]
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