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Posted by: The Sumaira Foundation in News & Announcements
August 10, 2022 – The Sumaira Foundation is pleased to welcome Dr. Sara Mariotto, neurologist at Azienda Ospedaliera Universitaria Integrata Verona (AOUI Verona), as the first member from Italy America to join […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On July 28, 2022, TSF was joined by 100 friends of the Foundation to celebrate 8 years of illuminating the darkness of NMOSD and MOGAD at The Envoy Hotel’s Lookout […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
BOSTON, MA, August 4, 2022 – The Sumaira Foundation (TSF), a nonprofit organization focused on the rare neuroimmune diseases of NMOSD and MOGAD, is pleased to announce that it is […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient, Voices of NMO
Every day we wake up, we surely never expect our day to end with everything turned upside down – and our life changed forever. But it is exactly what happened […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
While I was pregnant, I began having blurred vision. I went to see ophthalmologists, opticians, and general practitioners, but they kept saying nothing was wrong. I was sent to see […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Hi, my name is Noelani. I am 30 years old, was born and raised in Hawaii but currently reside in Nevada! Looking back, there were signs throughout my childhood of […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
WASHINGTON, May 26, 2022—The PAN Foundation and The Sumaira Foundation (TSF) today announced they are launching a new partnership to help people living with neuromyelitis optica spectrum disorder (NMOSD), providing […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
It started innocuously. In 2008 we moved to Ottawa with my employer for my career in pest control. On a gray, cloudy but humid day, I was out removing a […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient, Voices of NMO
It all began with a tremor. It was September 2018, and I was off on maternity leave after having my second daughter earlier that year. As nice as that should […]
Read MorePosted by: The Sumaira Foundation in Caregiver, MOG, Voices of NMO
My beautiful 4-year-old (5 years old now) daughter Jaidyn woke up one morning in late April 2021 with a headache, fever, vomiting, and very lethargic. Her grandmother and I took […]
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