Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My name is Hali and I am a 19 year old Scottish Law student living with NMOSD. — It all began in August 2021 when I developed a rash on the left side of my neck. It caused extreme nerve pain in the brain when touched the area and would trigger shaking spasms. I then […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
January 21, 2022 – The Sumaira Foundation is pleased to welcome Pr. Jacqueline Palace and Pr. Sarosh Irani from University of Oxford University to its Medical Advisory Board Jacqueline Palace, BM (Hons) FRCP DM Jacqueline Palace is a consultant neurologist in Oxford and Professor in the Nuffield Department of Clinical Neurosciences, Oxford University. She runs […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
December 1, 2021 — The Sumaira Foundation is proud to announce the grant recipients of TSF’s 2021 SPARK and Unicorn grants. Congratulations to our 5 recipients who each received $25,000 to initiate their research projects! HLA Association in Pediatric MOG-AD, NMOSD, and ADEM 2021 Unicorn Grant recipient Nusrat Ahsan, MD | Children’s Hospital of Los […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
September 21, 2021 — The Sumaira Foundation for NMO is pleased to welcome Stephanie Hamzo to its board of directors. Stephanie Hamzo With a true passion for patients, and dedication to connecting patients/caregivers in need of resources and support, Stephanie Hamzo has built her career in rare and ultra-rare disease communities. Throughout many roles she […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
My name is Mary Lou Gallegos. I was born and raised in San Antonio, Texas. I am the co-owner/founder of SA Perks L.L.C Detox Juices and Tonics. I am the mother of four amazing children as well as a step daughter. In addition to that, I have four adorable grandchildren. I am a wife […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
February 16, 2021 – The Sumaira Foundation for NMO (TSF) is pleased to announce the Light the Way Forward Grant made possible by a research grant from Viela Bio. Viela Bio is establishing the Light the Way Forward Grant to fuel research aimed to improve understanding of neuromyelitis optica spectrum disorder (NMOSD) and positively impact […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
November 9, 2020 – We are proud to announce the grant recipients of TSF’s 2020 research grants. Congratulations to our recipients who received $25,000 to initiate their projects! Diagnostics in NMOSD Farrah Mateen, MD, PhD | Massachusetts General Hospital (Boston, MA) Aim: To pilot a novel point-of-care dry blood spot diagnostic test for patients with […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Today this is where I am – right here and right now. God has a plan, yesterday is gone and tomorrow may never be – It’s up to me as to how I make the best of it. Much, much more of the story of “NMO & Me” to unfold, as Dr. Will Meador, one […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, TM, Voices of NMO
My name is Kellin. I am a 28-year-old South African NMO patient and this is my story… Late in 2015, my father suddenly passed away. It was a shock to my system and I was not prepared for it. In the months/years to follow, I experienced weird symptoms – which I now know were due […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
August 18, 2020 – The Sumaira Foundation is pleased to present NMOSD/MOG-AD Support Groups & Pages Our team hopes that this document will serve as a valuable resource to our small but mighty community! A clickable PDF version is available: NMOSD/MOG-AD Support Groups & Pages This list has been compiled by Lelainia Lloyd, TSF Ambassador […]
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