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Posted by: The Sumaira Foundation in NMOSD, Patient, Voices of TSF
At age eight, when I first started chemotherapy for my autoimmune disease, the neurologist told my parents the maximum amount of time I could be on it was three years, […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMOSD, Professional, Voices of TSF
I am a caregiver to my daughter, Nell, who was diagnosed with NMO at age 9. Prior to her diagnosis, she was an active, vibrant girl playing travel lacrosse, robustly […]
Read MorePosted by: The Sumaira Foundation in
You’re invited to attend “Pediatric MOGAD & NMOSD” on Wednesday, April 12th at 12:00 PM EDT featuring Dr. Brenda Banwell, Chief of Child Neurology and Co-Director of the Neuroscience Center […]
Read MorePosted by: The Sumaira Foundation in Caregiver, MOGAD, Voices of TSF
My beautiful 4-year-old (5 years old now) daughter Jaidyn woke up one morning in late April 2021 with a headache, fever, vomiting, and very lethargic. Her grandmother and I took […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of TSF
My first NMO symptoms hit three years ago when I was 9; I’m 12 now. To be fully transparent, I don’t actually fully remember that time very clearly. In January […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMOSD, Voices of TSF
August 29, 2017 will forever be embedded in my mind because it was the day my 9 year old daughter, Bella, woke up sick. It was the day that would […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMOSD, Voices of TSF
On December 25, 2018, we finally received answers and a diagnosis after Dominic became ill on November 19th with what we thought was a bug that was going around his […]
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