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Posted by: The Sumaira Foundation in Caregiver, NMOSD, ON, Voices of TSF
My name is Veronica and this is my NMO story. I am not a patient but a mother/caregiver of an NMO patient. I have always been in a way, made […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of TSF
Back in 2013 and 2014, I completed two 100km walks to raise money for Oxfam – something I am so proud to have done! BUT in 2016, when I tried […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
August 23, 2019 – The Sumaira Foundation for NMO (TSF) and Connor B. Judge Foundation (CBJF) are proud to present Demystifying NMO, a podcast series aimed at simplifying scientific jargon associated […]
Read MorePosted by: The Sumaira Foundation in MOGAD, Patient, Voices of TSF
Now that I have been diagnosed with Myelin Oligodendrocyte Glycoprotein Antibody-Associated disease, or MOG-Ab disease, I have met others who are afflicted and have listened to their stories. They all […]
Read MorePosted by: The Sumaira Foundation in NMOSD, ON, Patient, Voices of TSF
In February 2019, I received an NMOSD diagnosis after nearly 11 years of being treated for multiple sclerosis… I think when you are diagnosed with a chronic disease, knowing who […]
Read MorePosted by: The Sumaira Foundation in NMOSD, ON, Patient, Voices of TSF
My NMO story started about 15 years ago. I was a sophomore in high school and was just released for summer break… The very next day, I started to feel […]
Read MorePosted by: The Sumaira Foundation in NMOSD, Patient, Voices of TSF
On Monday morning, Pam had a headache. For a woman who never got headaches, this was notable. In addition, when she turned her eyes right and left, she experienced eye […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On October 11, 2018, The Sumaira Foundation for NMO (TSF) announced its partnership with the Transverse Myelitis Association (TMA). Both organizations specialize in raising awareness for rare neuro-immune disorders while […]
Read MorePosted by: The Sumaira Foundation in NMOSD, ON, Patient, Transverse Myelitis (TM), Voices of TSF
Julie has had NMO for at least a dozen years. From before and since that time, she has been diagnosed with a number of other conditions. She has been […]
Read MorePosted by: The Sumaira Foundation in NMOSD, ON, Patient, Voices of TSF
Ann and her husband were at the seaside, collecting seaweed to use in a kitchen garden they were digging. Ann noticed a tightness in and around her chest, but assumed […]
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