Posted by: The Sumaira Foundation in News & Announcements
December 1, 2021 — The Sumaira Foundation is proud to announce the grant recipients of TSF’s 2021 SPARK and Unicorn grants. Congratulations to our 5 recipients who each received $25,000 to initiate their research projects! HLA Association in Pediatric MOG-AD, NMOSD, and ADEM 2021 Unicorn Grant recipient Nusrat Ahsan, MD | Children’s Hospital of Los […]
Read MorePosted by: The Sumaira Foundation in NMO, Professional, TM, Voices of NMO
Maureen is a nurse. She worked in neurocritical care at Johns Hopkins Hospital for many years before she had ever heard of NMO. But in 2007, shortly after Dr. Benjamin Greenberg joined the faculty at Johns Hopkins, he recruited her to work with him in neuroimmunology. It was there that she first came into contact […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO
I was 33 years old in 1993, when I experienced a sudden attack of optic neuritis, an inflammation that damages the optic nerve causing vision loss. A small black dot, obstructing the vision in my left eye turned into complete blindness in that eye in a matter of days. While admitted to Upstate University Hospital […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient, Voices of NMO
Now that I have been diagnosed with Myelin Oligodendrocyte Glycoprotein Antibody-Associated disease, or MOG-Ab disease, I have met others who are afflicted and have listened to their stories. They all start similarly, with an acute attack, out of the blue, and always marking the start of an unexpected turn in health. My story is different. […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Jamie was diagnosed with Non-Hodgkins Lymphoma at the age of 35. Her condition was such that she didn’t need treatment, just monitoring. She was even healthy enough to have a second child. After the birth, though, she was put on Rituximab for the lymphoma, once a week for four weeks. Two years later, one night […]
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