Journée patients – Maladies neuroinflammatoires rares et apparentées
À tous les patients et aidants touchés par des maladies neuro-inflammatoires rares à Montréal et dans la province de Québec! Montréal nous voilà ! Vous ou l'un de vos proches […]
À tous les patients et aidants touchés par des maladies neuro-inflammatoires rares à Montréal et dans la province de Québec! Montréal nous voilà ! Vous ou l'un de vos proches […]
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe, inclusive space for family members, partners, siblings, children, and loved ones to connect, share, and be heard. Led […]
You’ve likely heard about CAR-T but do you know what it is and what it means for those living with rare neuroimmune disorders? Join us on June 17th at 5:00 […]
TSF is inviting patients and caregivers impacted by rare neuroinflammatory & related disorders from Minnesota and the upper Midwest region! We're coming to Rochester! Are you or your loved one […]
The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved ones ride the rollercoaster of feelings throughout their daily lives, from the moment of symptom onset. Often, getting the proper diagnosis is a journey of […]
Vivir con NMOSD puede afectar muchos aspectos de la vida diaria: física, emocional y socialmente. Únase a TSF LatAm para un importante seminario web, “Vivir bien con NMOSD: Cómo manejar […]
Understanding insurance coverage can be overwhelming, especially when treatment decisions are impacted by policies like step therapy. Join us Thursday, June 25 at 5:00 PM PT / 8:00 PM ET […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and MOGAD. This first-of-its-kind session offers a safe, inclusive space for family members, partners, siblings, children, and loved ones to connect, share, and be heard. Led […]
Nutrir el cuerpo es fundamental cuando se vive con una enfermedad desmielinizante. Acompáñenos con el Dr. Carlos Navas de Colombia, quien lidera la iniciativa de Inmunonutrición LATAM de LACTRIMS, para […]
The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved ones ride the rollercoaster of feelings throughout their daily lives, from the moment of symptom onset. Often, getting the proper diagnosis is a journey of […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]