En enfermedades desmielinizantes, donde la afectación de la mielina enlentece la conducción de los impulsos eléctricos, la reeducación de la escritura aplica técnicas gráficas específicas orientadas a desautomatizar la producción de texto y firma. Esta práctica refuerza la actividad de las vías aferentes y eferentes mientras entrena las funciones cognitivas involucradas. Escribir a mano desafía […]
¿Usted o un ser querido vive con NMOSD? Lo invitamos a acompañarnos en un webinar especial titulado **"Comprendiendo el anticuerpo AQP4 en NMOSD"**, con la Dra. Pilar Perachino, de Argentina. En esta sesión, la Dra. Perachino explicará qué es el anticuerpo AQP4, cuál es su papel en el NMOSD, cómo contribuye al diagnóstico de la […]
Join TSF and IPMSSG on October 20, 2026, on the 22nd floor of the SickKids Patient Support Centre for an exclusive evening connecting global leaders in neuroimmunology. Enjoy an inspiring setting above Toronto’s skyline while engaging in meaningful conversations, collaboration and networking. This special event will feature simultaneous research update sessions focused on adult and […]
Are you a clinician, researcher, fellow, resident or trainee interested in NMOSD, MOGAD and related neuroimmunological disorders? Join us for an evening of discussion, mentorship and networking with leading experts […]
The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 […]
Steroids can be an important part of treatment for many rare neuroimmune conditions, but what happens when they’re used over a longer period of time? Join Dr. Amy Kunchok for […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 […]
Gemeinsam stärker: Ein Tag voller Wissen, Austausch und Begegnung für Menschen mit Morbus Basedow und endokriner Orbitopathie Im Rahmen der TED Awareness Week: Wir bringen Betroffene, Angehörige sowie Expertinnen und […]
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and […]
À tous les patients et aidants touchés par des maladies auto-immunes et auto-inflammatoires rares en France et en Belgique ! Vous ou l'un de vos proches est touché par : […]
The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved […]
