MOGAD in LatAm
¿Usted o un ser querido vive con MOGAD? Lo invitamos a acompañarnos el 5 de agosto en un webinar especial con el Dr. Edgar Carnero Contentti, del Hospital Alemán de […]
12 events found.
TSF Webinar
Events
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Virtual: Global
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When Autoimmune Diseases Overlap: Understanding Multiple Diagnoses
What happens when one autoimmune or neuroimmune condition isn’t the whole story? For some patients, receiving multiple diagnoses can bring even more questions and uncertainty. Join Dr. Lilyana Amezcua from USC for an accessible conversation about overlapping autoimmune diseases, why multiple diagnoses can occur, and how clinicians approach symptoms that may not fit neatly into […]
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Meet the Author: Lisa Lauter
Meet the Author: Lisa Lauter, Author of *Songbirds Keep Singing* Join The Sumaira Foundation for a special edition of our Meet the Author series featuring Lisa Lauter, an author and patient living with autoimmune encephalitis (AE), and author of the memoir *Songbirds Keep Singing*. In this heartfelt conversation, Lisa will share the story behind her […]
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Caregiver Burnout: Preventing Burnout and Supporting the Critical Link
Caregivers are an essential part of the rare neuroimmune community—but caring for someone you love can come with uncertainty, stress, and challenges that are not always easy to talk about. When you’re focused on supporting someone else, it can be easy to put your own needs on the back burner. Join Dr. Daniel Rohe from […]
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Little Patients, Big Questions: Understanding Pediatric Neuroimmune Diseases
When your child is living with a neuroimmune disease, the questions can feel endless. What is happening in their body? What does a diagnosis mean for their future? And how can parents and caregivers feel more confident navigating care? Join Dr. Kristen Fisher of Texas Children’s for an approachable conversation about pediatric neuroimmune diseases. Together, […]
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Financial Health Workshop Series – How to Set Goals, Build a Budget & Save
Managing your finances can feel overwhelming, especially when living with the added costs and uncertainty that can come with a rare disease. In this first session of our three-part Financial Health series, Angelica Civilus, Vice President, Community Manager with Chase Bank, will share practical money skills to help you feel more confident about your financial […]
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Financial Health Workshop Series – Improving Credit and Managing Debt
Credit and debt can sometimes feel complicated, confusing, or even stressful—but understanding your options can be an important step toward greater financial confidence. In the second session of our three-part Financial Health series, Angelica Civilus, Vice President, Community Manager with Chase Bank, will break down the basics of credit and share practical strategies for managing […]
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Reeducación de la escritura
En enfermedades desmielinizantes, donde la afectación de la mielina enlentece la conducción de los impulsos eléctricos, la reeducación de la escritura aplica técnicas gráficas específicas orientadas a desautomatizar la producción de texto y firma. Esta práctica refuerza la actividad de las vías aferentes y eferentes mientras entrena las funciones cognitivas involucradas. Escribir a mano desafía […]
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Financial Health Workshop Series – Ways to Help Avoid Fraud & Scam
Scams and financial fraud are constantly evolving, and knowing what to look for can help you protect yourself and your loved ones. In the final session of our three-part Financial Health series, Angelica Civilus, Vice President, Community Manager with Chase Bank, will share practical tips for recognizing common scams, identifying potential warning signs, and taking […]
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Reeducación de la escritura: taller práctico
En enfermedades desmielinizantes, donde la afectación de la mielina enlentece la conducción de los impulsos eléctricos, la reeducación de la escritura aplica técnicas gráficas específicas orientadas a desautomatizar la producción de texto y firma. Esta práctica refuerza la actividad de las vías aferentes y eferentes mientras entrena las funciones cognitivas involucradas. Escribir a mano desafía […]
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Comprendiendo el anticuerpo AQP4 en NMOSD
Virtual: Global¿Usted o un ser querido vive con NMOSD? Lo invitamos a acompañarnos en un webinar especial titulado **"Comprendiendo el anticuerpo AQP4 en NMOSD"**, con la Dra. Pilar Perachino, de Argentina. En esta sesión, la Dra. Perachino explicará qué es el anticuerpo AQP4, cuál es su papel en el NMOSD, cómo contribuye al diagnóstico de la […]
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Mas alla del diagnóstico de la NMOSD Panel de Expertos : perspectivas multidisciplinarias para un cuidado integral
El manejo del Trastorno del Espectro de la Neuromielitis Óptica (NMOSD) ha estado centrado de forma casi exclusiva en el control del brote agudo y la inmunosupresión. Sin embargo, el paciente convive las 24 horas del día con el impacto físico, cognitivo y emocional de la enfermedad. Este encuentro busca romper con esa visión y […]